Thank you for attending our AGM Action Duchenne held our AGM on 19th March 2024 and would like to thank all of our staff members, trustees and …
Determination and achievement
This article is written by Florence Boulton, National Director “We are all stronger, together” is a fantastic motto, but it’s even better when put …
Peer to peer support – Chloe and Lyndsey
This article is written by Duchenne parents Chloe and Lyndsey who were carefully matched by our Support team. Chloe In Jan 2021 we officially …
Peer-to-peer support – I don’t feel so alone anymore
This article is written by a Duchenne Mum, Vicki, about her experience with Action Duchenne’s peer-to-peer support. Hi my name is Vicki, I have an …
Peer-to-peer support – I don’t feel so alone anymoreRead More
Peer-to-peer support – meeting a fellow mom
This article is written by a Duchenne Mum, Ruth, about her experience with Action Duchenne's peer-to-peer support. When my son was diagnosed with …
Project update: Supporting families through diagnosis and impossible decisions
How we’re supporting Newly Diagnosed Duchenne families through the diagnosis and the impossible decisions they are forced to make. The last year …
Project update: Supporting families through diagnosis and impossible decisionsRead More
Springing into action
A message from our National Director, Florence Boulton It was 2 years ago when I first joined my new team around a table in a meeting room in …
Join Dr. David Schonfeld Webinars
How to talk to children about Duchenne - the early years We know how hard it is for Duchenne parents, carers and family members to find the 'right' …
End of project report summary – Clinical Trials Lectureship (Newcastle)
We are delighted to report the outcomes of our grant for a Clinical Trials Lectureship. The grant, which was supported by a consortium of seven UK …
End of project report summary – Clinical Trials Lectureship (Newcastle)Read More
Behind the scenes at Action Duchenne’s Santa’s Grotto
This time last year, I was proudly clicking ‘share’ on the impact report for our 2020 Christmas Campaign. We’d sprinkled a touch of magic at a time …
Behind the scenes at Action Duchenne’s Santa’s GrottoRead More
Action Duchenne brings Christmas magic to Duchenne families
On 17th December 2021, UK charity Action Duchenne, with support from Sporting Bears, brought light, hope and Christmas magic to 32 families living …
Action Duchenne brings Christmas magic to Duchenne familiesRead More
Happy Holidays from our National Director
It’s beginning to look a lot like Christmas! This week, we’ve launched our Action Duchenne Santa’s Grotto; a little thank you to our …
