Delve into the concept and significance of rare diseases and their impact. …
Dystrophinopathies
What is a dystrophinopathy? Uncover the complexities and variations within dystrophinopathies, including Duchenne and Becker muscular dystrophies. …
What is Duchenne muscular dystrophy?
Explore the fundamental aspects and characteristics of Duchenne muscular dystrophy. …
Origin of the name Duchenne muscular dystrophy
Discover the history behind the naming of Duchenne muscular dystrophy. …
Grief and bereavement webinar
We know how hard it is for parents, carers and family members to understand and process anticipatory grief when they receive the diagnosis of Duchenne …
How to talk to your child about Duchenne – the early years
We know how hard it is for Duchenne parents, carers and family members to find the ‘right’ words to talk with children about Duchenne muscular …
How to talk to your child about Duchenne – the early yearsRead More
Understanding the psychology of learning and behaviour in Duchenne muscular dystrophy
The better you understand your child or young person, the more equipped you are to help them manage their behaviour. I found the webinar so …
Understanding the psychology of learning and behaviour in Duchenne muscular dystrophyRead More
Webinar has life-changing impact on Duchenne family
"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …
Webinar has life-changing impact on Duchenne familyRead More
Returning to school – advice from expert SEN
Your chance to watch the recording of the Webinar with inspiring SEN expert Clair Warner. About the expert Clair is Head of Service at …
Returning to school – tips and advice
Marion Main, expert Duchenne physiotherapist from Great Ormond Street Hospital shares her decades of expertise, covering important topics in the order …
Practical tips to help your child or young person
Webinar with inspiring SEN expert Clair Warner. IntroLife skills 11:39 Thinking/memory 32:15 Creativity 39:59 Super skills 44:36 Communication …
Specialist paediatric neuromuscular Occupational Therapist
Your chance to watch the webinar with paediatric neuromuscular Occupational Therapist, Denise Wooding from Alder Hey. Watch the …
Specialist paediatric neuromuscular Occupational TherapistRead More
