Action Duchenne 2020 International Conference Closing Remarks by Florence Boulton, National Director
It has been truly a great couple of days. Thanks so much for all your kind wishes and positive encouragement. This makes me very proud of the team, and all who contributed to making this a great conference. Please join me in thanking them all.
On behalf of the staff team, and the Board of Trustees, I wish to extend my sincere thanks to our amazing volunteers, Ambassadors, Patrons, in particular Harry Hill for adding a sparkle of fun and humour to yesterday’s session. Thank you to all our wonderful speakers, and our sponsors and exhibitors, without whom this conference would not have been possible. And especially to you, our Duchenne families from across the globe, this is your conference, your network, and you make this as lively and interactive as you did.
Supporting you
We, as a community have experienced one of the greatest challenges over the past few months. Experiencing lockdown and living with Duchenne has been so hard on you, I feel it is very important to acknowledge my deepest respect for you all, and to emphasise that
We are here. Truly here for you all. We will continue to support you through your darkest times, sharing advice, knowledge, and of course, a shoulder to cry on when you need it. My hope is that each and every one of you can leave the conference feeling empowered, positive, and fully supported by Action Duchenne and each other.
Please do follow us on social media, sign up to our newsletter, and get involved in our projects. We are making sure that there is the chance for everyone to be a part of this inspiring and welcoming community, I urge you to take these opportunities and get involved.
The future
It is a true privilege to be a part of this community, and over the next few months and years, I hope that together we can build stronger connections with other patient organisations, government agencies, NHS and care organisations, researchers and biotech companies in the UK and worldwide, I can see opportunities to increase our influence, enhance our reputation and gain greater recognition for the work we do!
I have one final thing to ask of you before I close this year’s event. Please complete the post-conference survey. Your feedback will help us to shape the way we work with you in the future, and continue to ensure the content you receive from us continues to stay on point, and helps you to navigate these difficult times, and to support you every step of your journey.
For now, please block out sometime in your diary for our 2021 international conference, and I look forward to seeing you in person in Hinckley Island Jury’s Inn Hotel, on the 5th and 6th of November 2021!
LEGO Quest
