Duchenne muscular dystrophy is a rare condition, not many people have heard of it before. Nominating us as your Charity of the Year is a unique opportunity for your staff to get behind our lesser known but life changing cause, showing how your company is committed to making a real difference.
Action Duchenne is at the heart of the Duchenne community. We are
- supporting over 1,500 families a year navigate their journey from diagnosis to end of life and bereavement
- educating and empowering parents, carers, schools and health care professionals and people living with Duchenne
- funding innovative research projects to find better treatments and one day a cure
By partnering with us your business will also benefit from our expertise in disability rights and awareness. We can help you to create a workforce that recognises the importance of employing disabled people with rare conditions.
Why partner with us?
- We support people nationally and locally – we work across the UK to provide virtual and face to face support, including a yearly international conference which is the largest of it’s kind in Europe
- Our team are passionate, dedicated and experienced – many of our board and employees are Duchenne parents or live with Duchenne and are truly committed to helping your company make a difference
- We are unique – Duchenne may be rare but it affects so many, children and adults living with the condition and also their parents or carers, siblings, friends, schools and employers.
- We love to have fun – We know that life is here to be lived to it’s very best!
Previous Charity of the Year partnerships
Great British Beer Festival 2016 & 2022
GA Solictiors
Action Duchenne is a deserving small charity that is not only looking to improve the lives of those living with Duchenne, but also supports their families and creates a sense of community
Steve Ramsden, Managing Partner at GA Solicitors
Alderwood Recruitment
Amazing effort by Alderwood at last week’s charity bake sale for Action Duchenne, it’s great to see a charity where all their staff are so invested and attentive to those also wanting to help.
Grace Hackett, Alderwood Recruitment
Career Legal
If you would like to know more about Charity of the Year partnerships or if you are an employee who would like to nominate Action Duchenne we would love to hear from you.
Call us on 07535 498 506 and leave a message or email victoria.young@actionduchenne.org
