We know how hard it is for parents, carers and family members to understand and process anticipatory grief when they receive the diagnosis of Duchenne muscular dystrophy.
To help you and your family understand more about your feelings and thought processes, we are proud to share the webinar recording with crisis and bereavement expert Dr David Schonfeld.
- Understanding the process of anticipating the death of a child
- Understanding feelings around the time of diagnosis relating to grief over loss of the imagined or idealised child
- Learning from others discussions – “what I wish I knew then that I know now”
Things you might find helpful
Get support from us
Thank you for coming to us for help and support. Action Duchenne is here for you, whether you are a parent facing a new diagnosis, or an adult who has been living with the condition for some time.
Please contact us info@actionduchenne.org to arrange a time to chat to someone who understands, to share any worries you may have and to get support.
How to talk to your child about Duchenne – the early years
