• Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub
  •  0 items - £0.00
  • Menu
  • Skip to right header navigation
  • Skip to main content
  • Skip to secondary navigation
  • Skip to primary sidebar
  • Skip to footer

Before Header

  • My account
  •  0 items - £0.00

Action Duchenne

Header Right

  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Make a real difference with our amazing events and challenges

You are here: Home / News / Make a real difference with our amazing events and challenges
Make a real difference with our amazing events and challenges

5 June 2026 by Victoria Edwards

“I just want to say that Victoria and the rest of the Action Duchenne family are incredible human beings. The support they give is amazing. When you run for them, you’re not just a number or a fundraising target, you genuinely feel like you’re making a difference. You see what your fundraising helps achieve, how it supports families, and how it helps the boys living with Duchenne” Leanne, 2026 London Marathon Runner

When you take on a fundraising challenge for Action Duchenne, we support you in the same way that we support our Duchenne community. You’ll experience the charity from the very heart, having contact with our Fundraising, Support and Science teams to keep you boosted along the way.

Take on the UK’s Best Trek for Action Duchenne

Fly the Action Duchenne flag from the summits of the highest Three Peaks in the UK. With the Summer months ahead for training to prepare for this unforgettable challenge which takes place from 3rd to 5th October, there is no better time to sign up!

The trek will be led by the expert team at Global Adventure Challenges, who have put together all the information you need.

We will be holding an Online Information Evening with Judy from Global Adventure Challenges on Thursday 2nd July at 6pm so that you can find out more about the challenge itself and how we can support you with your fundraising! Register here to join us.

Take to the Skies for World Duchenne Awareness Day

We know you already understand the strength, courage, and determination that defines our community. If you’re looking for a powerful way to honour that spirit, take on a Skydive on Sunday 6th of September to mark World Duchenne Awareness Day.

It’s the perfect challenge: you can pick an airfield close buy to where you are, there’s no preparation and no training required – just turn up on the day and enjoy.

Take the leap, raise awareness, and do something extraordinary for a cause close to your heart.

Register Here

London Landmarks Half Marathon 2027

Places Available Now

London Landmarks Half Marathon takes place on Sunday 4th April 2027 and it’s always a favourite amongst our runners. The route and atmosphere really do provide the miles and the smiles.

Secure your 2027 place now!

Apply to run the 2027 TCS London Marathon

Running the London Marathon for Action Duchenne is an experience you will never forget. We are with you on your whole journey, from registering to the big day and beyond.

“I was so proud to be emblazoned with the Action Duchenne logo” Ben, 2026 London Marathon Runner

Apply today for a chance to be a part of our amazing London Marathon team!

Applications close on 10th July at 5pm.

Take on your own challenge

Many people choose to do their own challenge to fundraise for us. Whatever your idea, we can support you with t-shirts, setting up online donation pages and encouragement along the way.

If you want to chat about any of our challenges contact our Fundraising Officer, Victoria and you can find more fundraising ideas and information about regular giving on our website.

It’s a Team Effort

Do you know someone who’d love to take on a challenge for us? We want as many people as possible to join our community and support, empower and equip every DMD community in their journey from diagnosis and beyond. Help us by sharing this email with family and friends to get them involved!

“What keeps me going through every tough moment is the thought of Oliver being proud of me and knowing that the money raised helps him and other boys like him.” Alix, Action Duchenne Fundraiser

Share this:

Category: News

Previous Post: « Entrada Therapeutics Provides Quarterly Update on ELEVATE Studies.  
Next Post: Translarna (Ataluren) Not Accepted for Continued Use Under NHSScotland »

Primary Sidebar

From our community

Louise’s London Marathon Story

Louise’s London Marathon Story Written by Louise Ruddick “My relationship with Action Duchenne came about very spontaneously at the beginning of January this year. My brother, George, was diagnosed with Duchenne back in 1992, just before his third birthday. He was obviously too young to be aware however the impact that it had on our …

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it”  Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne Mum

Written by Victoria Edwards, Action Duchenne’s Fundraising Officer and mum to Dougie (who lives with Duchenne) and Allie. Feeling Blue “This Monday was Blue Monday, and wow… I really felt it. It was grey, drizzly, my son was up half the night and ended up off school from sheer tiredness. My daughter went in to …

Footer

Action Duchenne
5th Floor, Mariner House
62 Prince Street
Bristol
BS1 4QD

07535 498 506
info@actionduchenne.org 

 

 

 

 

 

 

 

 

Subscribe to our mailing list

Do you consent to receiving regular email updates? *
Email Format
  • Accessibility
  • Privacy Policy
  • Terms & Conditions

© Action Duchenne - Registered Charity No 1101971 - Scottish Charity No SC043852