A very warm welcome to the newest person to join our Action Duchenne family, Alex Berbank. Having supported hundreds of people experiencing …
Your invitation to the newly diagnosed Duchenne family event
Taking place online on Saturday 23rd October 2021 from 14:00 - 18:00 GMT, this event is a chance for families who are new to the Duchenne community to …
Your invitation to the newly diagnosed Duchenne family eventRead More
Newly diagnosed event – watch recordings
We were delighted to welcome so many families from across the globe to our virtual event for newly diagnosed families or those who are newcomers to …
Recognising the power of our community
A message from the National Director, Florence BoultonThe past four weeks, since I last wrote to you all, has been a rollercoaster of extreme highs …
Newly diagnosed families special event
When you receive the diagnosis of Duchenne muscular dystrophy, the amount of information you receive seems overwhelming. Here at Action Duchenne, …
A Life Fulfilled In Everyway (ALFIE)
By Duchenne Dad, Kieron SalesHello again!First of all I’d just also like to say a big thank you to everyone that has taken time to read my blog. I …
