Recorded on 9th March, coinciding with International Women’s Day, this webinar shines a light on the often-overlooked health needs of Duchenne carriers.
Women carrying the Duchenne gene often experience having their symptoms dismissed or unrecognised, creating uncertainty around the care they require. This session addresses that gap head-on — covering cardiac screening, symptom awareness, and practical care guidance — equipping carriers with both the knowledge and the validation they deserve.
Presented by Uruj, founder of Saiyna Therapy, accredited BACP Psychotherapist, and former Genetic Counsellor, whose unique expertise sits at the intersection of mental health and complex genetic conditions.
Find out more about the upcoming webinars in our 2026 series and more about our ongoing work, in-person events and how you can get involved in our monthly newsletter.
We can support you and your family wherever you are in your journey. If you’d like one of our Support Team to contact you, let us know here and we will be in touch. You can also find out more about our monthly support groups and our group counselling programme.
Edgewise Therapeutics Announces Long-Term Sevasemten Data in Becker Muscular Dystrophy
