Webinar Series 2025: Shining a Spotlight on Duchenne
Action Duchenne invites you to join us for our Webinar Series 2025. We want to shine a spotlight on the most challenging and important areas of Duchenne muscular dystrophy, bringing national and international experts to you, in the comfort of your own home. Together we can navigate the complex environment that a Duchenne diagnosis brings, empowering you to make the best-informed decisions while dealing with a complex and often overwhelming diagnosis.
What is it?
The series will run every month, from March to October and will cover a large variety of different themes ranging from coping with grief and loss, neurodiversity in Duchenne, to bone health and the impact of steroids. The webinars will be virtual, held on Zoom, with an expert speaker and members from the Action Duchenne team. We will continue to develop our webinars throughout the year based on the feedback we receive from you; the aim of the series is to provide cutting-edge and engaging talks about Duchenne muscular dystrophy and to provide a global virtual platform for our international community .
Knowledge is power – don’t miss this opportunity.
Section 1: Coping with the Diagnosis
Join us for two webinars with Professor David Schonfeld focusing on ‘The Impact of Diagnosis’ and ‘Coping with Grief and Loss.
Read moreSection 2 – Neurodiversity in Duchenne
Join us for 2 Webinars with Dr James Poysky focusing on Neurodiversity in Duchenne
Read moreSection 3 – Bone Health and Puberty
Join us for webinars with Dr Claire Wood and Dr Jarod Wong focusing on Puberty, Bone Health and Weight Management in Duchenne
Read moreSection 4 – Education and Healthcare
Bringing you two webinars looking at different aspects of education: EHCP expertise with Treloar College and the importance of educational and emotional needs with Janet Hoskin and Benjamin James.
Read moreSection 5 – Positive Engagement
We’ll be joined by MindJam, who provide emotional and SEN support for young people through gaming, game design and digital skills.
Read more
