World Duchenne Awareness Day 2025
September 7th is World Duchenne Awareness Day or WDAD. Each year, an annual campaign aims to increase awareness of Duchenne and Becker muscular dystrophy. World Duchenne Awareness Day raises awareness and inspires action to improve the lives of people living with Duchenne and Becker muscular dystrophy.
There is still relatively little awareness of the impact of Duchenne on the lives of those living with it. World Duchenne Awarness Day aims to change this. In 2024, The United Nations has marked a momentous milestone for the global rare disease community by officially designating September 7th as World Duchenne Awareness Day. The adoption of the resolution “World Duchenne Awareness Day” is the UN’s first formal acknowledgment of a day dedicated to a rare disease.
We would love you to join us for WDAD 2025, and here are a few ways you can get involved.
Family: the heart of care
This year the theme for World Duchenne Awareness Day is “Family: The Heart Of Care”. This theme recognises that a Duchenne journey is shaped by the amazing people who travel the journey alongside someone living with Duchenne.
Read moreChallenge 79
We invite you and your family to take part in Challenge 79—a simple, creative way to raise awareness and feel connected with the global Duchenne community.
Read moreBad Shirt Friday
A fun, simple way to support the Duchenne community and raise vital funds—by wearing your worst (or most brilliantly bold) shirt. Whether it’s bright, loud, clashing or downright questionable, we want to see it on Friday 5th September.
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