As part of our Science Education programme, we are running a series of Winter Webinars with some of your favourite Duchenne experts!
We are delighted to announce that we will be welcoming renowned physiotherapist and Duchenne expert Marion Main to our webinar series.
This webinar will take place on Tuesday 20th February via Zoom
Marion is a regular and always popular speaker at our Annual International Conference. Her webinar will focus on the crucial role of physiotherapy in Duchenne and will cover:
Physio for the adults
– What sports are helpful
– One of the feedback from the conference physio session was that actual stretches were missing. Maybe you could also focus this webinar on stretches, it will be a very useful asset for the families
– Finding a balance to not further damage muscles : how far to go with exercise/movement and the do/don’ts ? Esp from parents with young children who did not know how they could best preserve muscle function.
– What is north star, what do they use in their assessments?
- Physiotherapy for adults living with Duchenne
- What sports are helpful
- Stretches
- How far to go with exercise and movement – dos and don’ts
- What is the role of the North Star Assessment
She will also answer your questions and concerns. Don’t miss this opportunity to gain practical knowledge and understanding. Knowledge is power!
Want to know more?
Our Science Live videos are bite-sized Duchenne science, split into different sections and presented by our Science Communications team in an accessible way that’s easy to share with family, friends and care teams.
Save the Date
The Annual Action Duchenne International Conference 2024 will be held on Friday 8th and Saturday 9th November 2024.
Action Duchenne would like to thank the following sponsors who have provided financial support for this project but have no involvement in this project: HM Government (in partnership with the National Lottery Community Fund), Pfizer, PTC Therapeutics, Roche, GWF, Sarepta Therapeutics and all the individuals who made their contributions to make this project happen.
