Our International Conference brings together Duchenne families, clinicians, therapists, researchers, pharmacological companies and, most importantly, those living with Duchenne muscular dystrophy from across the globe.
Tickets are free and unlimited for all UK and International Duchenne families.
We’ll be delivering an inspiring, themed programme, drawing upon the knowledge and expertise of those living with Duchenne, international experts, Duchenne families and partner organisations to deliver the very best content to our community.
Need help?
If you have any questions or are experiencing any difficulties during the event, please call 02476 369747, email actionduchenne2021@conferencecare.com or contact the support team via the helpdesk tab on the platform.
View and download LIVE agenda
Conference brochure 2021
Conference testimonials
Your Testimonials – #ADCONF20
“Brilliant conference. Thank you.” – Hazel Garside, Duchenne Family Member, England
“It was very enjoyable and informative and the software worked really well. Thank you.” – Sarah Williamson, UK
“More information and helpful advice on lots of different areas. So much feedback and tips for caring with a child with duchenne.” – Beth Ings, Duchenne Family Member, UK
“The conference has really made me feel so much connected to the Duchenne community even more than I felt already. I know alot more about the scientific aspects now of Duchenne and have alot more information on how best to help the school support my son continuing with what they have already put in place for him.” – Rebecca Quinn, Duchenne Parent, England
“I really enjoyed the sessions and will watch the on demand videos over the coming weeks.” – Jacqui McCaw, Duchenne Family Member, Ireland
“It intorduced me some new topics to research, thank you for your great effort.” – İlker, Duchenne Family Member, Turkey
“Very interesting and insightful speakers” – Lance Dale, Australia
“The Action Duchenne conference is like Duchenne Christmas – it feels like everyone is part of a big extended DMD family, you catch up with old friends, there’s lovely food, a big meal, and a party. It’s also much more than Christmas to be honest because everyone there knows what we are all going through. Tapping into that deep understanding and solidarity keeps me going for the rest of the year. It really does. That’s the impact!!!” – Katherine Wedell, Duchenne Parent, UK
“Globally it was a challenge (fully virtual conference) that was very well overcomed – impressive! congratulations!” – Adalberto Moutinho, Duchenne Family Member, Portugal
“Very well organised and very informative.” – Julie Burslem, Scotland
Newly diagnosed family event LIVE agenda and information
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Action Duchenne believes this is a pivotal time for the Duchenne population with real progress being made in our aims of developing effective treatments for all, building a stronger community and striving for a more inclusive society. There is no better place to demonstrate the strength of the Duchenne community than the annual Action Duchenne International Conference.