• About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • In-Person Support Events
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
  •  0 items - £0.00
  • Menu
  • Skip to right header navigation
  • Skip to main content
  • Skip to secondary navigation
  • Skip to primary sidebar
  • Skip to footer

Before Header

  • My account
  •  0 items - £0.00

Action Duchenne

Header Right

  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • In-Person Support Events
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
#shareyourhero and be #strongforsamson

#shareyourhero and be #strongforsamson

You are here: Home / Appeals introduction / #shareyourhero and be #strongforsamson

Do you have a real-life hero? Let them and others know – share your hero now

Ever since our son Samson was diagnosed with Duchenne muscular dystrophy back in October 2015, we’ve made it our goal to ensure we are doing absolutely everything we can to help Samson and other people living with Duchenne. We have immersed ourselves in the community, learning as much as possible to make Samson’s life the best possible. We raise the profile of Duchenne through our Strong for Samson initiative and relentlessly fundraise for Action Duchenne.

Needless to say, Samson is our hero. A brave little 6-year-old boy who, despite his condition, never lets anything faze him and remains funny, kind and loving.

Now, the word ‘hero’ is one that’s often thrown around when people are describing their favourite celebrities, sports personalities or similar. And while these individuals may indeed be heroes to their followers, many other real-life heroes are often left unsung.

We want to send a message out to our supporters, friends and beyond that you haven’t got to be a celebrity, famous, or a film star to be a hero. We want to acknowledge and celebrate everyday heroes. We’ve come up with an idea based around people sharing their stories about genuine, everyday heroes in their lives. These heroes can be anyone who’s inspired you, helped you, been an influence in your life or simply someone who you want to champion.

For example, Samson’s dad, Lex, says: “When my Grandad was alive, he never judged me and always welcomed me with open arms despite sporting a blonde mohican, ripped jeans and piercings. I never got the chance to say how important he was and remains to me. Unfortunately, he passed away when I was travelling in Australia in my early 20s. He will always be my hero, a simple, home-loving gentleman who made such an impact on my life.” 

Here’s how you can get involved with #shareyourhero:

  1. Create a video telling your hero WHY they are your hero and the impact they have had on your life – here’s an example to give you some ideas
  2. Share the video on your wall using the  the hashtags #shareyourhero and #strongforsamson
  3. Tag other people in your post who you think should share their heroes too

Don’t worry if you can’t make a short video or get a picture of you and your hero together to share online, simply spread the love and appreciation by saying thank you to them in a social post. Tell them what they mean to you and thank them for everything they’ve done for you – don’t forget to include the hashtags!

So, If you’ve got a true hero in your life (or maybe more than one!?) and you want to shout their praises from the rooftops, this is your opportunity to do so.

Get in touch with us now and get involved with the Share Your Hero initiative. Telling someone how much they mean to you and how they’ve positively impacted your life is a wonderful gift to give.

follow Strong For Samson 

Share this:

Oops! We could not locate your form.

Target: £10000

0.2%

Raised so far: £20

Primary Sidebar

From our community

Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne Mum

Written by Victoria Edwards, Action Duchenne’s Fundraising Officer and mum to Dougie (who lives with Duchenne) and Allie. Feeling Blue “This Monday was Blue Monday, and wow… I really felt it. It was grey, drizzly, my son was up half the night and ended up off school from sheer tiredness. My daughter went in to …

“Making contact with Action Duchenne provided a lifeline”

“Making contact with Action Duchenne provided a lifeline”: Find out why Ben Dolling decided to run the London Marathon dressed as a parrot! Harry was diagnosed with Duchenne muscular dystrophy in 2019 Ben and his wife have 3 children: a daughter in year 3 and a son in his first year of university and Harry, …

The Power of Shared Experience: “Honestly, it would’ve been a much harder road without having joined this group.”   

Action Duchenne have monthly online meet-ups for Duchenne dads, mums and grandparents, facilitated by our Family Support Officers and designed to enable connection with those who truly understand. A Duchenne diagnosis can often set people apart from the support systems they usually rely on. Our support groups mean you can meet people who know exactly …

Footer

Action Duchenne
5th Floor, Mariner House
62 Prince Street
Bristol
BS1 4QD

07535 498 506
info@actionduchenne.org 

 

 

 

 

 

 

 

 

Subscribe to our mailing list

Do you consent to receiving regular email updates? *
Email Format
  • Accessibility
  • Privacy Policy
  • Terms & Conditions

© Action Duchenne - Registered Charity No 1101971 - Scottish Charity No SC043852

Like most websites we use cookies to deliver a personalised service. To use the website as intended please accept cookies.
Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Non-necessary
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.
SAVE & ACCEPT