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  • Challenge 79
  • About Us
    • Our vision
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Support for you and your family
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Action Duchenne Annual International Conference 2025
    • Highlights from the Annual Action Duchenne Annual International 2024
    • Annual International Conference 2023 Video Recordings
    • Annual International Conference 2022 Recordings
      • Adults with Duchenne
      • Growing up with Duchenne
      • The Duchenne Journey
      • What is new in Duchenne research?
  • News, Webinars and Blogs
    • News
    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
  • Support Us
    • Help Make a Life Beyond Duchenne Possible – Every Month
    • Fundraising Events and Challenges
    • Take on a challenge for Duchenne
    • Shop

Blogs

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Guest Blog: Duchenne Parents Karen and Jamie Thompson share their experience of attending the Action Duchenne Annual International Conference

July 24, 2025 by Lizzie Cox

Guest Blog: Duchenne Parents Karen and Jamie Thompson share their experience of attending the Action Duchenne Annual International …

Guest Blog: Duchenne Parents Karen and Jamie Thompson share their experience of attending the Action Duchenne Annual International ConferenceRead More

The Heart of Care

June 17, 2025 by Lizzie Cox

The Heart of Care We have had some key reminders of what we are working towards as a charity over the last few weeks. Volunteer’s Week (2nd - 8th …

The Heart of CareRead More

Mental Health Awareness Week: Alex’s Journal

May 16, 2025 by Lizzie Cox

Written By Alex Berbank 15 Minutes a Day I've really enjoyed getting into the frame of mind to look at my mental health. Before this week I …

Mental Health Awareness Week: Alex’s JournalRead More

Mental Health Awareness Week: Alex’s Journal

May 15, 2025 by Lizzie Cox

Mental Health Awareness Week Journal, Written by Alex Berbank Watch Alex's Vlog for Mental Health Awareness Week Thursday's Update: Meditation …

Mental Health Awareness Week: Alex’s JournalRead More

Mental Health Awareness Week – Alex’s Blog

May 14, 2025 by Lizzie Cox

Written by Alex Berbank Wednesday: Getting Into The Swing of Things The changes yesterday were about removing phones from certain times in the …

Mental Health Awareness Week – Alex’s BlogRead More

Mental Health Awareness Week: Alex’s Journal

May 13, 2025 by Lizzie Cox

Written by Alex Berbank Day 2: A Collection of Little Things It’s day 2 now and yesterday I thought it was a really good start. As I said last …

Mental Health Awareness Week: Alex’s JournalRead More

Mental Health Awareness Week: Alex’s Journal

May 12, 2025 by Lizzie Cox

Where's My Mental Health? So where am I? I like stats and figures and I thought about what would give my mental health out of 100. Then at the end …

Mental Health Awareness Week: Alex’s JournalRead More

Mental Health and Community – Duchenne Dads and Male Mental Health

May 10, 2025 by Lizzie Cox

Written by Partnerships and Outreach Manager Alex Berbank You can listen to the audio recording of this blog here: It's somewhat of a buzz …

Mental Health and Community – Duchenne Dads and Male Mental HealthRead More

An Action Duchenne Spring Update

May 9, 2025 by Lizzie Cox

An Action Duchenne Spring Update As we head into May, welcoming warmer days and lighter evenings, it’s a time to reflect back over the first few …

An Action Duchenne Spring UpdateRead More

Coping with Diagnosis with David Schonfeld

April 17, 2025 by John Marrin

March marked a special milestone at Action Duchenne as we kicked off our brand-new webinar series! Each month, we are diving deeper into the important …

Coping with Diagnosis with David SchonfeldRead More

School Support – Alex’s Blog

March 24, 2025 by Lizzie Cox

School Support - Alex's Blog Hear from Partnerships and Outreach Manager Alex Berbank about the support Action Duchenne can offer in schools. …

School Support – Alex’s BlogRead More

Spotlight on Dr David Schonfeld

February 17, 2025 by Lizzie Cox

Spotlight on Dr David Schonfeld Dr. David Schonfeld is a distinguished pediatrician and child development expert withover three decades of …

Spotlight on Dr David SchonfeldRead More

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