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  • About Us
    • Our Purpose
    • What We Do
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    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
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Hear From Our Community

Our community is at the heart of our work. Read our blogs to find out more about the many aspects of a journey with Duchenne muscular dystrophy directly from those who are living it.

Have you got a story to tell? We’d love to share it – please get in touch to find out more: lizzie.cox@actionduchenne.org

You are here: Home / Hear From Our Community

Mental Health Awareness Week – Alex’s Blog

14 May 2025 by Lizzie Cox

Written by Alex Berbank Wednesday: Getting Into The Swing of Things The changes yesterday were about removing phones from certain times in the …

Mental Health Awareness Week – Alex’s BlogRead More

Mental Health Awareness Week: Alex’s Journal

13 May 2025 by Lizzie Cox

Written by Alex Berbank Day 2: A Collection of Little Things It’s day 2 now and yesterday I thought it was a really good start. As I said last …

Mental Health Awareness Week: Alex’s JournalRead More

Mental Health Awareness Week: Alex’s Journal

12 May 2025 by Lizzie Cox

Where's My Mental Health? So where am I? I like stats and figures and I thought about what would give my mental health out of 100. Then at the end …

Mental Health Awareness Week: Alex’s JournalRead More

Mental Health and Community – Duchenne Dads and Male Mental Health

10 May 2025 by Lizzie Cox

Written by Partnerships and Outreach Manager Alex Berbank You can listen to the audio recording of this blog here: It's somewhat of a buzz …

Mental Health and Community – Duchenne Dads and Male Mental HealthRead More

An Action Duchenne Spring Update

9 May 2025 by Lizzie Cox

An Action Duchenne Spring Update As we head into May, welcoming warmer days and lighter evenings, it’s a time to reflect back over the first few …

An Action Duchenne Spring UpdateRead More

Coping with Diagnosis with David Schonfeld

17 April 2025 by John Marrin

March marked a special milestone at Action Duchenne as we kicked off our brand-new webinar series! Each month, we are diving deeper into the important …

Coping with Diagnosis with David SchonfeldRead More

School Support – Alex’s Blog

24 March 2025 by Lizzie Cox

School Support - Alex's Blog Hear from Partnerships and Outreach Manager Alex Berbank about the support Action Duchenne can offer in schools. …

School Support – Alex’s BlogRead More

Spotlight on Dr David Schonfeld

17 February 2025 by Lizzie Cox

Spotlight on Dr David Schonfeld Dr. David Schonfeld is a distinguished pediatrician and child development expert withover three decades of …

Spotlight on Dr David SchonfeldRead More

Reflections and Hope

20 December 2024 by Lizzie Cox

As we approach the festive season and the end of 2024, I have been reflecting on a year filled with triumphs and challenges. It has been a time of …

Reflections and HopeRead More

Action Duchenne Selected for ‘Season of Soul’ Initiative by Jaguar Land Rover Solihull

19 December 2024 by Victoria Edwards

Action Duchenne is deeply honoured to be chosen as one of the charities for JLR Solihull’s ‘Season of Soul’ initiative. Ian Taylor, a Duchenne dad and …

Action Duchenne Selected for ‘Season of Soul’ Initiative by Jaguar Land Rover SolihullRead More

Winter Wishes

17 December 2024 by DawnAD

Winter Wishes at Hyde Park On the 27th November, we were thrilled to offer complimentary tickets to 8 of our families to the Winter Wishes event at …

Winter WishesRead More

Educating, Connecting, Wellbeing at the Action Duchenne Annual International Conference 2024

17 November 2024 by Florence Boulton

Action Duchenne Annual International Conference 2024 was an unforgettable gathering of patients, families, experts, and supporters, all brought …

Educating, Connecting, Wellbeing at the Action Duchenne Annual International Conference 2024Read More

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