Action Duchenne is deeply honoured to be chosen as one of the charities for JLR Solihull’s ‘Season of Soul’ initiative. Ian Taylor, a Duchenne dad and …
Action Duchenne Selected for ‘Season of Soul’ Initiative by Jaguar Land Rover SolihullRead More
Winter Wishes
Winter Wishes at Hyde Park On the 27th November, we were thrilled to offer complimentary tickets to 8 of our families to the Winter Wishes event at …
Educating, Connecting, Wellbeing at the Action Duchenne Annual International Conference 2024
Action Duchenne Annual International Conference 2024 was an unforgettable gathering of patients, families, experts, and supporters, all brought …
Help Develop Nutrition Information Resources for Duchenne Muscular Dystrophy
If you are a caregiver of/or a young person aged 7-25 with Duchenne, researchers from the University of Glasgow, and Edge Hill University, need your …
Help Develop Nutrition Information Resources for Duchenne Muscular DystrophyRead More
Welcoming Autumn 2024
As we transition from the warmth of summer to the crisp embrace of autumn, it’s a moment to reflect on our progress and the importance of community …
Help Improve Understanding of Nutrition and Weight Management in DMD
Do you have 15 minutes and want to help improve our scientific understanding of the influence of nutrition and weight management in Duchenne muscular …
Help Improve Understanding of Nutrition and Weight Management in DMDRead More
Welcoming Summer
Welcoming Summer It feels as though we have waited a while for warmer days this year and it is hard to believe that we are already over half way …
Fundraising Story – The Glasgow Kiltwalk for Action Duchenne
The Glasgow Kiltwalk for Action Duchenne Written by Sarah Kelly Last month my partner Paul and I took part in the Glasgow Kiltwalk to raise …
Fundraising Story – The Glasgow Kiltwalk for Action DuchenneRead More
Science on Tour 2024 – Oxford
On Tuesday the 11th of June, the team at Action Duchenne launched the first in our series of Science on Tour for 2024, kicking off our tour at the …
Carrying Duchenne – A sisters view
By Sarah Kelly Medical conditions can be isolating for a family, particularly rare ones. Our lives changed when my little brother Jonathan was …
Sunshine and Support
As the sunshine begins to make a welcome appearance, I hope you have all had a wonderful May bank holiday and are looking forward to time together …
Givinostat & Epigenetics – An Overview
This week we saw the NICE scoping consultation take place for a potential new treatment for Duchenne muscular dystrophy, Givinostat. We want to …
