What are corticosteroids?Corticosteroids are a class of steroid hormones that includes glucocorticoids and mineralocorticoids. However, the term …
Finding Purpose and Hope – A Sibling’s Story
Written by Pilar MaestreI am Pilar, currently 22 years old, and I have lived most of my life in Spain, where I was born. Recently, I volunteered for …
Resilience, care and transformation – end of year reflections from our CEO
Resilience, care and transformation - end of year reflections from our CEO As we head towards the bustle and business of the festive season, I am …
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Advocacy and Campaigns: using our experience, voice and resources to make change happen
Advocacy and Campaigns: using our experience, voice and resources to make change happenWritten by Kathy WedellWe are pleased to introduce Kathy …
Advocacy and Campaigns: using our experience, voice and resources to make change happenRead More
Creating a Shared Vision for Our Duchenne Community – Reflections and Thanks
Creating a Shared Vision for Our Duchenne Community - Reflections and ThanksWow, what an amazing two days we have had together at our Annual …
Creating a Shared Vision for Our Duchenne Community – Reflections and ThanksRead More
The strength of our community
The strength of our communityAs we move towards the last few months of the year, I am so proud of the hard work that is coming to fruition. When we …
My experience as a mentor on the Yes, I Can Residential Weekend
My experience as a mentor on the Yes, I Can Residential WeekendA blog by Benjamin JamesRecently, I was asked by Action Duchenne to be a mentor for the …
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Duchenne from the sidelines, a sibling perspective
Duchenne from the sidelines, a sibling perspectiveWritten by Logan Kaye, Duchenne siblingWhenever you hear about a family who has been affected by a …
Supporting families with science
Supporting families with scienceIt's already been 8 months since I joined Action Duchenne as a Science Communications Coordinator – a journey filled …
A Postcard from Florence
A Postcard from FlorenceFlorence joined a group of young people and their parents and carers at the Calvert Trust in Exmoor over the August bank …
July Runner Support Session
We had our second runner support session on Zoom on Thursday 13th July at 7pm. Unfortunately no one was able to attend so we did not record the …
Summer Fundraising
Summer FundraisingThe Summer is a brilliant time to fundraise - the sunshine, longer days and school holidays mean there’s much more scope to get …
