"Making something positive out of something negative" “We chose to support Action Duchenne because not only do they focus on research & …
“Making something positive out of something negative”Read More
May 12, 2023 by Lizzie Deeble
"Making something positive out of something negative" “We chose to support Action Duchenne because not only do they focus on research & …
“Making something positive out of something negative”Read More
May 11, 2023 by Lizzie Deeble
The story behind Ruth's charity dinner dance Ruth and Ian Taylor tell us about their journey with Duchenne so far in this inspiring interview. Ruth …
May 5, 2023 by Lizzie Deeble
Lizzie Deeble, Action Duchenne Project Assistant and Duchenne Parent, shares the some of the challenges facing her son Sebastian at this stage of his …
April 4, 2023 by Victoria Young
On Sunday 2nd April our seven AD Champions took to the streets of London to run the half marathon London Landmarks route. The weather was good - no …
AD Champions take on London Landmarks Half MarathonRead More
April 3, 2023 by Florence Boulton
Lighter Days and Warmer Months As we head into Spring, it is wonderful to begin to see the longer lighter days, the flowers beginning to bloom and …
March 10, 2023 by Florence Boulton
Continuing to come together 2023 has already brought meaningful victories as we rally science to our support. In January we heard that NICE has …
February 22, 2023 by Sofiya Got
Translarna (ataluren) is the first licensed treatment for an underlying genetic cause of Duchenne muscular dystrophy. It has been designed to target a …
February 2, 2023 by Lizzie Deeble
Starting 2023 with hope I want to begin by wishing all of you a very happy new year and sharing the hope that 2023 will be a year of positive …
January 19, 2023 by Victoria Young
It’s been a busy few months building our 2023 Events Fundraising challenges. It’s set to be an amazing year, with so many amazing individuals signing …
2023 is the year of the half marathon and family friendly, fully inclusive events!Read More
December 20, 2022 by Lizzie Deeble
A blog by Florence, National Director As we move toward the end of 2022, I’ve been looking back on the year we've had and reflecting on both the …
December 9, 2022 by Lizzie Deeble
More than Hanging Out Blog by Jess Breeze, Programme Assistant When I spent an amazing day with the Sporting Bears on 19th March, (see blog here …
December 7, 2022 by Victoria Young
by Julia Marren, Duchenne parent to Lucas and Charlie We’ve never taken the boys abroad before; I was excited but worried. How would the boys cope …
Action Duchenne
Wellesley House
Duke of Wellington Avenue Royal Arsenal
London
SE18 6SS
07535 498 506
info@actionduchenne.org