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  • About Us
    • Our Purpose
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    • Work For Us
    • Volunteer
    • The DMD Registry
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  • Get Support
    • Support Calendar – What’s On
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      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
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  • AD Annual International Conference
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    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
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Conference

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Overview of dystrophin restoring approaches

February 2, 2024 by Lizzie Cox

Overview of the role of dystrophin in Duchenne and Beckers MD, the therapeutic options and challenges in treating neuromuscular diseases. …

Overview of dystrophin restoring approachesRead More

Overview of inflammation and fibrosis reducing strategies

February 2, 2024 by Lizzie Cox

The role of inflammation and fibrosis in DMD myopathy and the latest therapeutic strategies for reducing muscle degeneration. …

Overview of inflammation and fibrosis reducing strategiesRead More

Dystrophinopathy: Female Carriers

February 2, 2024 by Lizzie Cox

The importance of understanding the genetics of female carriers, the prevalence of clinical symptoms and how they're caused, and the services …

Dystrophinopathy: Female CarriersRead More

Genetics of Duchenne muscular dystrophy: Why, hows and mutations

February 2, 2024 by Lizzie Cox

An introduction to the genome and genetics of Duchenne muscular dystrophy: why it occurs, the types of mutations, and how it is tested for. …

Genetics of Duchenne muscular dystrophy: Why, hows and mutationsRead More

Thank you for attending the Action Duchenne Annual International Conference 2023!

November 14, 2023 by Lizzie Cox

…

Thank you for attending the Action Duchenne Annual International Conference 2023!Read More

Welcome to the Annual Action Duchenne International Conference 2023

November 10, 2023 by Florence Boulton

Welcome to the Annual Action Duchenne International Conference 2023 On behalf of the whole team at Action Duchenne, I would like to give you the …

Welcome to the Annual Action Duchenne International Conference 2023Read More

Registration is OPEN for the Action Duchenne Annual International Conference 2023

June 30, 2023 by Lizzie Cox

Registration is OPEN for the Action Duchenne Annual International Conference 2023 FREE tickets for Duchenne families as well as every young …

<strong>Registration is OPEN for the Action Duchenne Annual International Conference 2023</strong>Read More

Ask the pharmaceutical companies your questions ahead of Action Duchenne’s 2023 Annual International Conference

May 25, 2023 by Lizzie Cox

Ask the pharmaceutical companies your questions ahead of Action Duchenne's 2023 Annual International Conference To make sure you get your voice …

Ask the pharmaceutical companies your questions ahead of Action Duchenne’s 2023 Annual International ConferenceRead More

More than Hanging Out

December 9, 2022 by Lizzie Cox

More than Hanging Out Blog by Jess Breeze, Programme Assistant When I spent an amazing day with the Sporting Bears on 19th March, (see blog here …

More than Hanging OutRead More

The Action Duchenne International Conference 2022; Opening Remarks

November 11, 2022 by Robbie Handley

Our international conference has now officially started! After months of hard work and dedication from our amazing team to get the event on, we are so …

The Action Duchenne International Conference 2022; Opening RemarksRead More

Questions at the Conference

September 23, 2022 by Lynnette

Action Duchenne is providing a platform for you, the Duchenne community, to ask questions from the leading Pharmaceutical companies driving …

Questions at the ConferenceRead More

Conference agenda

September 20, 2022 by Lynnette

Join us for two days in November as we explore the latest research, treatments and updates. Watch presentations, Q&A sessions and join discussions …

Conference agendaRead More

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