Calling all LEGO master builders We are super excited to launch the Action Duchenne LEGO Quest. To be in with a chance of winning one of our 8 …
Helena sends message of support for our big event
Our Patron and exceptional actress, Helena Bonham Carter sent us this message to share with you; "I am proud to invite you to this year's Action …
Virtual guided tour of the Conference platform
Watch Lynnette's short video showing you round the Conference platform. In the video you will find out How to registerHow to log inUpdate …
Support with navigating school
Book a 1-2-1 session with our two experts, to discuss and ask for support around the school/college process for your young person, advice on EHCPs and …
Take part in small group sessions at the Conference
At the Action Duchenne International Conference, not only will you be able to chat with experts during the weekend, ask your questions through the Q …
Take part in small group sessions at the ConferenceRead More
Newly diagnosed event – watch recordings
We were delighted to welcome so many families from across the globe to our virtual event for newly diagnosed families or those who are newcomers to …
A space to talk
It is quite usual for people to be in two minds about starting counselling. This is one of the reasons why we're offering our families the …
Conference platform is LIVE
If you have already registered your place at the Action Duchenne International Conference, you now have access to the LIVE platform. Things we …
Recognising the power of our community
A message from the National Director, Florence Boulton The past four weeks, since I last wrote to you all, has been a rollercoaster of extreme …
Calling all gamers!
Here's your chance to have a say in the 'gaming at the Conference' session for the virtual Action Duchenne International Conference 2020. We'd like …
Webinar has life-changing impact on Duchenne family
"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …
Webinar has life-changing impact on Duchenne familyRead More
Newly diagnosed families special event
When you receive the diagnosis of Duchenne muscular dystrophy, the amount of information you receive seems overwhelming. Here at Action …