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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • In-Person Support Events
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Conference

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Recognising the power of our community

12 October 2020 by Lynnette

A message from the National Director, Florence Boulton The past four weeks, since I last wrote to you all, has been a rollercoaster of extreme …

Recognising the power of our communityRead More

Calling all gamers!

12 October 2020 by Lynnette

Here's your chance to have a say in the 'gaming at the Conference' session for the virtual Action Duchenne International Conference 2020. We'd like …

Calling all gamers!Read More

Webinar has life-changing impact on Duchenne family

5 October 2020 by Lynnette

"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …

Webinar has life-changing impact on Duchenne familyRead More

Newly diagnosed families special event

1 October 2020 by Lynnette

When you receive the diagnosis of Duchenne muscular dystrophy, the amount of information you receive seems overwhelming.  Here at Action …

Newly diagnosed families special eventRead More

New sessions announced

28 September 2020 by Lynnette

This year's Action Duchenne International Conference is virtual and you are invited!  Tickets are FREE, all are welcome and we'll be sharing …

New sessions announcedRead More

Invitation for the international Duchenne community

17 September 2020 by Lynnette

This year, the Action Duchenne International Conference is taking place ONLINE! Hear from top international Duchenne experts in a content-packed …

Invitation for the international Duchenne communityRead More

Gene therapy experts announced

17 September 2020 by Lynnette

Have we got an exciting line up of speakers and sessions for you! We will be announcing more details over the coming days and weeks. But for …

Gene therapy experts announcedRead More

Share your experiences to help others

20 August 2020 by Lynnette

As the Action Duchenne International Conference 2020 is virtual this year, we have the opportunity to do things a little differently! As well as an …

Share your experiences to help othersRead More

The 2020 Action Duchenne International Conference Registration is now OPEN!

29 July 2020 by Lynnette

We are delighted to announce that our Action Duchenne International Conference 2020 (‘the Conference’) is now open for registration. The event …

The 2020 Action Duchenne International Conference Registration is now OPEN!Read More

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