Impact of Aviva fundraising campaign

Thank you to everyone who supported our recent fundraising campaign through the Aviva Community Fund UK.

We are delighted to let you know we received 67 donations, not only from the Duchenne community, but from Aviva colleagues and individuals from outside of the Duchenne community.

The first Science on Tour events were so important, this project is vital for the Duchenne families.

Duchenne Mum

Raising the profile

We are proud to have, once again, raised the profile of Duchenne muscular dystrophy to the wider public, and have been inundated with comments and feedback on our project ‘Duchenne Science on Tour 2 – supporting families to make impossible decisions’.

We are making plans for post-lockdown life and this project will bring a series of ‘science roadshow’ events to our vulnerable families across the UK when it is safe to do so.

This project has captured the attention of thousands of followers on social media, with a reach of over 30,000 on Facebook alone since it’s launch on 3rd June 2020. With nearly 2,000 likes and shares on Facebook, the Science on Tour 2 project has certainly gained momentum across our Duchenne community and beyond.

Thank you to our Patron

Our wonderful Patron, Helena Bonham Carter sent us a message of support which we were proud to share with our followers;

I’m absolutely delighted to back this groundbreaking project. It will give families affected by Duchenne Muscular Dystrophy the information about Duchenne science to support them in making the best choices for their children.  Please pledge your support today.

Helena Bonham Carter – Action Duchenne Patron

Thank you all

From all the team here at Action Duchenne, thank you to every single person who supported the fundraising campaign.

To all the donors, and people who shared our project page, we are so grateful to have you behind us.

What next?

We are looking forward to making the Duchenne Science on Tour 2 series take flight and to seeing many of you across the UK in the coming months.

Missed out on donating? You can make a contribution to the Duchenne Science on Tour 2 project here.

The science tour gave me and my wife a chances to ask questions about trials and gain more knowledge. After experience one with our son which was suddenly stopped part way through, it felt like a bomb hitting us again. Thankfully talking to people at this tour was fantastic and picked us back up, to keep on fighting. Thank you.

Duchenne Dad

That’s a great video and a wonderful project – your efforts are truly inspirational! Our thoughts are with those who are being shielded and those who are shielding.

Donor

As a friend of a parent, whose child suffers with this condition, I am happy to do what I can to help make things just a little easier!

Donor

As part of a family living with Duchenne I know the importance of every penny raised for every project connected with the condition. This one sounds awesome!!

Donor

It’s good to help other boys, girls and families affected by Duchenne by giving opportunities that maybe weren’t available in the past. All the best to you all.

Donor