I also want to meet other DMD parents, knowing that together we can help each other to be strong. I hope that, as well as fundraising, I can find a way to be involved in the incredible work that Action Duchenne are doing to beat this disease. Even if it is only to help another parent in their darkest moments as Action Duchenne have done for me.
Lizzie is a much loved part of the Action Duchenne family following her son Sebastian’s diagnosis with Duchenne in 2016.
Lizzie and James Deeble’s incredible family and friends have thrown themselves into fundraising in support of this very special family, taking part and organising fundraising events.
One of their close family friends, Stuart Molkenthin is even taking on London Marathon 2018 for us!
The Deeble’s family story
Lizzie’s blog
Lizzie shares her thoughts and feelings through her inspiring and thought provoking blog Sebastian’s Story.
A big thank you
Thank you Lizzie, James and all your supporters for your tremendous contribution to our work and for helping us to change lives.
Get involved
- Come to the Conference
- Call us 020 7250 8240
- Enquire about a visit to the Action Duchenne offices
- Share your story
- Read other family stories
