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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Action Duchenne

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Charity Dinner Dance

18 October 2024 by Lizzie Cox

Charity Dinner Dance In March 2023, Ruth Taylor and her amazing committee members held an incredible Charity Dinner Dance to fundraise for Action …

Charity Dinner DanceRead More

Fundraising Story – The Glasgow Kiltwalk for Action Duchenne

27 June 2024 by Lizzie Cox

The Glasgow Kiltwalk for Action Duchenne Written by Sarah Kelly Last month my partner Paul and I took part in the Glasgow Kiltwalk to raise …

Fundraising Story – The Glasgow Kiltwalk for Action DuchenneRead More

Come together with the Duchenne community at Action Duchenne’s Annual International Conference 2024

1 June 2024 by Lizzie Cox

Come together with the Duchenne community at Action Duchenne's Annual International Conference 2024 Friday 8th & Saturday 9th November 2024, …

Come together with the Duchenne community at Action Duchenne’s Annual International Conference 2024Read More

Finding Purpose and Hope – A Sibling’s Story

24 January 2024 by Lizzie Cox

Written by Pilar Maestre I am Pilar, currently 22 years old, and I have lived most of my life in Spain, where I was born. Recently, I volunteered …

Finding Purpose and Hope – A Sibling’s StoryRead More

RAF Falcons support Action Duchenne for their 2023 display season

25 April 2023 by Victoria Edwards

Charity is very important to the RAF Falcons and every year they find time during their busy schedule to raise money for select charities nominated by …

RAF Falcons support Action Duchenne for their 2023 display seasonRead More

Introducing our London Marathon Heroes

1 October 2021 by Victoria Edwards

Article by Victoria Young, Engagement and Support Officer This Sunday 3rd October we have four runners taking on the London Marathon and five …

Introducing our London Marathon HeroesRead More

Lottery backs ‘All-through Support’ for Duchenne

7 September 2021 by Lynnette

ON this World Duchenne Awareness Day, we are very pleased to announce that The National Lottery Community Fund has chosen to support our much-needed …

Lottery backs ‘All-through Support’ for DuchenneRead More

Making a difference

21 July 2021 by Lizzie Cox

It’s not all marathons and mountain climbing, the little things make a big impact too! Thanks to Jess Breeze (Action Duchenne volunteer and Mum …

Making a differenceRead More

Giving back in honour of Thomas

25 June 2021 by Victoria Edwards

When Thomas was around 7 years old, Adam remembers him having his appendix out. Adam arranged for a card to be signed by the whole school to wish him …

Giving back in honour of ThomasRead More

Dad completes amazing endurance event challenge for Action Duchenne

7 June 2021 by Victoria Edwards

Dan Brown has been running endurance events since January last year to raise money for Action Duchenne. On 5th June he completed his last endurance …

Dad completes amazing endurance event challenge for Action DuchenneRead More

Edinburgh Marathon ‘Running for a cure’

27 May 2021 by Victoria Edwards

On Sunday 30th May Ian is running the Edinburgh Marathon for Action Duchenne. Ian has been inspired to run 26.2 miles after seeing the challenges …

Edinburgh Marathon ‘Running for a cure’Read More

Edinburgh Marathon ‘Our run for Ben’

25 May 2021 by Victoria Edwards

I took up running, as a kind of therapy, shortly after Ben died.  I was kind of cajoled on by colleagues who had run the London Marathon in …

Edinburgh Marathon ‘Our run for Ben’Read More

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