Charity Dinner DanceIn March 2023, Ruth Taylor and her amazing committee members held an incredible Charity Dinner Dance to fundraise for Action …
Fundraising Story – The Glasgow Kiltwalk for Action Duchenne
The Glasgow Kiltwalk for Action DuchenneWritten by Sarah KellyLast month my partner Paul and I took part in the Glasgow Kiltwalk to raise money for …
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Come together with the Duchenne community at Action Duchenne’s Annual International Conference 2024
Come together with the Duchenne community at Action Duchenne's Annual International Conference 2024Friday 8th & Saturday 9th November 2024, …
Taking Control
Taking ControlAction Duchenne's Transition Projects for young people living with Duchenne. Yes I Can“Our Yes I Can transition project has had a …
Finding Purpose and Hope – A Sibling’s Story
Written by Pilar MaestreI am Pilar, currently 22 years old, and I have lived most of my life in Spain, where I was born. Recently, I volunteered for …
PTC reveals winners of STRIVE awards on World Duchenne Awareness Day
Over the past few months, we are proud to have shared photos, updates and stories from our ‘Yes I can’ project. You’ll have seen the looks of …
PTC reveals winners of STRIVE awards on World Duchenne Awareness DayRead More
Capturing highs and lows
Blog by Florence Boulton, National DirectorInvitation to Action Duchenne International Conference 2022‘Educating, enabling and including’ is the theme …
Diagnosis, support and fundraising
By Lyndsey KayeRiley was just 3 years old when he was diagnosed with Duchenne. There was no history of it in my family, so it came as such a shock. I …
Take part in small group sessions at the Conference
At the Action Duchenne International Conference, not only will you be able to chat with experts during the weekend, ask your questions through the Q …
Take part in small group sessions at the ConferenceRead More
A space to talk
It is quite usual for people to be in two minds about starting counselling. This is one of the reasons why we're offering our families the opportunity …
Recognising the power of our community
A message from the National Director, Florence BoultonThe past four weeks, since I last wrote to you all, has been a rollercoaster of extreme highs …
Physiotherapy webinar 4 with Marion Main (splints & orthotics)
Thank you to everyone who joined us online for our FREE webinar with Senior Physiotherapist at GOSH, the fantastic Marion Main.It was fascinating and …
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