Raise Your Voice for World Duchenne Awareness Day 2024
World Duchenne Awareness Day unites the global Duchenne community annually for advocacy, action and change. This year is a monumental milestone as it marks the first year that the United Nations have officially designated 7th September as World Duchenne Awareness Day.
Duchenne Awareness Day is held on the 7th September each year to honour the 79 exons on the dystrophin gene. An error on any one of these exons causes Duchenne. The theme this year is ‘Raise Your Voice for Duchenne’.
This year’s theme emphasises the importance of amplifying voices to advocate for the rights, inclusion and well-being of people living with Duchenne muscular dystrophy (DMD) and other dystrophinopathies. While life expectancy has increased over the last few years, there is still a long way to go in the fight for a better future for everyone living this devastating condition.
On September 7 the World Duchenne Organisation invites everyone, irrespective of their personal connection to Duchenne, to join in creating a more inclusive world where people living with disabilities are empowered to thrive.
What can YOU do?
Challenge 79
Enter our Challenge 79 as an individual or team – do it your way in your time
Read moreChallenge 79 for Schools
Enter Challenge 79 as a school – we are offering all schools a visit from our Science education team plus you can also enter our design competitions
Read moreBecome an Action Duchenne Member
Become a monthly member and join us in creating our vision for lives to no longer limited by Duchenne
Read moreRaise Your Voice
Tell us YOUR story so we can share it with the community. Email lizzie@actionduchenne.org
