Female Carrier leaflet
Action Duchenne, in collaboration with Sue Kenwrick, Principal Genetic Councellor, Addenbrooke’s Hospital, Cambridge, have produced a ground-breaking leaflet for female carriers ‘Being a Carrier for Duchenne Muscular Dystrophy’.
This leaflet was distributed to all Neuromuscular Centres, Genetic Services and groups working with families affected by Duchenne muscular dystrophy.
The inspiration for this leaflet came from workshops for Duchenne carriers and other female relatives held by Action Duchenne, as well as sibling events and discussions arising from the ‘What about Us’ element of the Lottery funded Takin’ Charge project.
The format of the community-led leaflet follows frequently asked questions that come up when carriers or relatives are given an opportunity to discuss the issues involved.
Manifesting Carriers
Read Jess’s blog about her daughter Wren ‘How did I get here?’
For further support please contact us on 07535 498 506 or email us at info@actionduchenne.org
