A blog by Duchenne Dad, Darren Well, CV19 is here, so what do we do about it, how will we fill our time, how do we alleviate the boredom of self …
In April 2016, 6 months after my son was diagnosed with Duchenne muscular dystrophy, I joined the Action Duchenne team. I felt I had to do something …
We recognised that keeping up with research news can be challenging, with news stories and press releases using language that's much more …
Hundreds inspired by Duchenne Science on Tour projectRead More
When the National Director role at Action Duchenne came up last November and I started reading about all the work the charity does, it was inspiring …
Lizzie, Duchenne Mummy and one of Action Duchenne's volunteer Community Champions, was asked to go into her son’s school to give a talk about Duchenne …
Raising the profile of Duchenne with Primary School pupils on Rare Disease DayRead More
Our Patient Advocate and Registry Curator, Angela Stringer attended a meeting this week in a Norfolk primary school to support a Duchenne …
As part of our vision of a world where lives are no longer limited by Duchenne muscular dystrophy, one of our key objectives is campaigning for …
Hot on the heels of her presentation to the group of Trainee Physiotherapists last week, Lynnette donned her Advocacy hat again and travelled to the …
Our vision is very clear, a world where lives are no longer limited by Duchenne muscular dystrophy. In our ongoing work to achieve this vision, along …
Taken from Benjamin James' blog HorizonsofHope - living with a neuromuscular condition, feelings, frustrations and hope. "Recently I have …
Check out a new blog from a Duchenne Dad's perspective by the brilliant Kieron Sales. https://duchdad.home.blog It’s a …
Things like this don’t happen to you… do they? – a Duchenne Dad’s perspectiveRead More
Fundraiser profile Dave Hampton Age 52 Devoted Husband & Father …
