Lizzie, Duchenne Mummy and one of Action Duchenne's volunteer Community Champions, was asked to go into her son’s school to give a talk about Duchenne …
Raising the profile of Duchenne with Primary School pupils on Rare Disease DayRead More
Advocacy at a Norfolk Primary school
Our Patient Advocate and Registry Curator, Angela Stringer attended a meeting this week in a Norfolk primary school to support a Duchenne …
Update on our campaigning work
As part of our vision of a world where lives are no longer limited by Duchenne muscular dystrophy, one of our key objectives is campaigning for …
Advocacy at a North West Primary School
Hot on the heels of her presentation to the group of Trainee Physiotherapists last week, Lynnette donned her Advocacy hat again and travelled to the …
Presenting Duchenne to our future physios
Our vision is very clear, a world where lives are no longer limited by Duchenne muscular dystrophy. In our ongoing work to achieve this vision, along …
Progression of time – Benjamin James
Taken from Benjamin James' blog HorizonsofHope - living with a neuromuscular condition, feelings, frustrations and hope. "Recently I have …
Things like this don’t happen to you… do they? – a Duchenne Dad’s perspective
Check out a new blog from a Duchenne Dad's perspective by the brilliant Kieron Sales. https://duchdad.home.blog It’s a …
Things like this don’t happen to you… do they? – a Duchenne Dad’s perspectiveRead More
Dave’s story
Fundraiser profile Dave Hampton Age 52 Devoted Husband & Father …
Redefining ‘normal’ – disability from a sibling’s perspective
Emily's blog addressed disability from a siblings perspective as her youngest brother lives with Duchenne muscular dystrophy. For those of you that …
Redefining ‘normal’ – disability from a sibling’s perspectiveRead More
Hear from our Skydivers!
12 amazing fundraisers jumped out of planes across the country on Saturday 7 July 2018. They raised a fantastic £9,000 to help us achieve our …
Lots to take away from the PPMD Conference
Last week, Neil Bennett, our new Director of Research attended the Parent Project Muscular Dystrophy (PPMD) Conference in Arizona, …
Spotlight on Fundraisers July 2018
Here are some of our wonderful fundraisers for this month! …
