A message from the National Director, Florence Boulton The past four weeks, since I last wrote to you all, has been a rollercoaster of extreme …
"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …
Webinar has life-changing impact on Duchenne familyRead More
There were times when we thought it might not happen, back in June when we had to postpone it and during the ride when we woke up on Saturday morning, …
We are proud to share Matt's story as he raises money for Action Duchenne throughout September with our very own Angela Stringer's son Jonathan in his …
A message from the National Director, Florence Boulton This week and next, many of our families are feeling a mix of emotions, as they send their …
Maggie and Maria are two wonderful volunteers who have shaken their buckets at collections, cheered at various events, as well helping at our …
A message from the National Director, Florence Boulton At the start of what would normally be the season for summer ‘holidays’, my thoughts go to …
By Dan Miller Whilst lockdown may be easing with some venues reopening, restrictions are still in place and so it remains a challenge to visit many …
A very special thank you to Eddie Curtis, 14, who bravely gave a presentation to 700 pupils at his school about Duchenne muscular dystrophy, and the …
Thank you to the staff and pupils at Immanuel CollegeRead More
Eimear is just 15 years old, she lives at home with her parents Deborah and Kevin, and siblings Oran 18, Ciara 17 and Niall who lives with Duchenne …
Sam's kind hearted, generous and thoughtful nature shines through everything he does to support us and our work. Inspired by his good friend Toby …
Shining a spotlight on Sam Heathcote – a very special young fundraiserRead More
We were so very shocked and saddened to hear the news of BJ Doherty's passing in January 2019. BJ was an incredible friend, father and husband, …
