We’re delighted to report the successful completion of our research project in Dr Yung-Yao Lin’s laboratory at Queen Mary University of London. The …
Project that aimed to combine stem cell and CRISPR technology is a successRead More
Newly diagnosed event agenda and joining instructions
We are looking forward to welcoming you to the online support and information event THIS Saturday 23 October from 14.00 - 18.00 (GMT). This event is …
Newly diagnosed event agenda and joining instructionsRead More
Brain Involvement in Dystrophinopathies (BIND) Study
BIND is a large-scale study involving six European countries (Denmark, France, Italy, Spain, The Netherlands, UK), with the aim of assessing the …
Brain Involvement in Dystrophinopathies (BIND) StudyRead More
13 year old receives scouting award for dedication, courage and determination
We are proud to share the news that Kiran Rowntree, from Sheffield, has received a rare award from the Chief Scout, Bear Grylls. Here is the moment …
13 year old receives scouting award for dedication, courage and determinationRead More
Community celebrates GP’s epic 362 miles in 6 days
This weekend marked the culmination of months of planning and preparation by the dedicated community around Niall, Deborah and Kevin O’Doherty from …
Your invitation to the newly diagnosed Duchenne family event
Taking place online on Saturday 23rd October 2021 from 14:00 - 18:00 GMT, this event is a chance for families who are new to the Duchenne community to …
Your invitation to the newly diagnosed Duchenne family eventRead More
Lottery backs ‘All-through Support’ for Duchenne
ON this World Duchenne Awareness Day, we are very pleased to announce that The National Lottery Community Fund has chosen to support our much-needed …
Your invitation to our 20th Conference
Florence, National Director of Action Duchenne invites you to register for this year's Conference Register below for this year's Action Duchenne …
Farewell and thank you to Zac Fargher
It was with some sadness that we announce our trustee, Zac Fargher, has resigned from his position on the Board, and will be leaving the UK in August, …
Drew’s Way First Steps walk
A big thank you and congratulations to new Duchenne parents Molly Pitts and Zak Denny who organised the hugely successful 'First Steps 7 mile walk' …
Trudi’s 50th Birthday Skydive for Action Duchenne
In 2020 Trudi's husband, Steve, bought her a tandem skydive as a present for her 50th birthday. Due to Covid restrictions she had to put it off. She …
Making a difference
It’s not all marathons and mountain climbing, the little things make a big impact too! Thanks to Jess Breeze (Action Duchenne volunteer and Mum …
