A big thank you and congratulations to new Duchenne parents Molly Pitts and Zak Denny who organised the hugely successful 'First Steps 7 mile walk' …
Trudi’s 50th Birthday Skydive for Action Duchenne
In 2020 Trudi's husband, Steve, bought her a tandem skydive as a present for her 50th birthday. Due to Covid restrictions she had to put it off. She …
Making a difference
It’s not all marathons and mountain climbing, the little things make a big impact too! Thanks to Jess Breeze (Action Duchenne volunteer and Mum …
Register for the virtual conference 2021
Following the success of last year's virtual event, this year’s Action Duchenne International Conference will again take place virtually on 13 and 14 …
610km cycle across Ireland and Northern Ireland
On the 17th and 18th July, John O’Brien is cycling from Mizen Head to Malin Head. A journey of 610km. He is taking on the challenge to raise money for …
Head of Fundraising and Partnerships
Reports to:National Director Type:PermanentWorking week:21 hours per week / 3 day per week Monday to Friday (days to be agreed)Hours:9am to …
We spend 88.7p in every £1 on research, support & education
Thank you to each and every one of our supporters for your continued dedication to our aims and objectives. It's important for us to keep you …
We spend 88.7p in every £1 on research, support & educationRead More
Action Duchenne receives peer-to-peer support grant
The hundreds of children, young people and adults living with Duchenne muscular dystrophy (DMD) in the United Kingdom and their families face many …
Action Duchenne receives peer-to-peer support grantRead More
Shining a spotlight on Gavin McAteer
The Challenge Gavin McAteer, with the aid of his two man support team, will run the entire length of Ireland solo, starting in Mizen, the most …
Action Duchenne’s chance to win £1,000
Action Duchenne is asking for nominations to win a £1,000 Movement for Good award from Ecclesiastical Insurance Group. Action Duchenne is …
Launching new ‘Music & Me’ podcast
Our new podcast, 'Music & Me' is an interview series featuring talented musicians from across all genres. Broadcaster and proud Ambassador, Jonny …
National Volunteers Week – a time to say ‘thank you’
This is a special week to celebrate and say a huge heartfelt thank you to all of our fabulous compassionate volunteers who give some much of their …
National Volunteers Week – a time to say ‘thank you’Read More
