We know how overwhelming and relentless the day to day life admin of a parent carer of a child, young person or adult living with Duchenne is.
Our online support sessions are a space to come if you need to share, offload, listen, get support, seek expert advice or ask any questions you have that you are not sure who to ask.
We are here, with you.
You can either have your camera on and chat, or keep your camera off and stay muted. Whatever way you choose, do pop along.
Friday Hive
Takes place every last Friday of the month from 11am-12am
Evening Hive
Takes place on the first Thursday of every month from 8pm – 9pm
D.A.D’s Night – Dads Against Duchenne
We know that being a Duchenne dad isn’t always easy and so we have a night just for dads – Dad’s Against Duchenne.Action Duchenne’s Outreach Officer Alex explains what it’s all about and why it’s so important.
“I know myself that sometimes when I’ve been in a tough place the last thing I feel like doing is unloading everything and talking through it bit by bit. In these cases it’s just nice to have a laugh with a few mates who get it, and know that I could talk about it if wanted to but they’d also understand if I didn’t. After speaking to a lot of dads I feel like we already have that community, we just need a place to hang out.”
Find out more and get the link to join us here:
https://www.actionduchenne.org/d-ads-night-dads-against-duchenne/
