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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • In-Person Support Events
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

World Duchenne Awareness Day 2024

You are here: Home / World Duchenne Awareness Day 2024
World Duchenne Awareness Day 2024

World Duchenne Awareness Day 2024

With just less than a month to go until World Duchenne Awareness Day, what can you do to Raise Your Voice for Duchenne?

World Duchenne Awareness Day unites the global Duchenne community annually for advocacy, action and change. This year is a monumental milestone as it marks the first year that the United Nations have officially designated 7th September as World Duchenne Awareness Day.

Duchenne Awareness Day is held on the 7th September each year to honour the 79 exons on the dystrophin gene. An error on any one of these exons causes Duchenne. 

We need YOU to come together alongside us to fight for the voices of everyone living with Duchenne.

What can YOU do this World Duchenne Awareness Day?

Challenge 79

Join in Action Duchenne’s Challenge 79 as an individual or a team.

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Challenge 79 for Schools

Enter Challenge 79 as a school – we are offering all schools a visit from our Science education team plus you can also enter our design competitions.

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Become a Member

Become a monthly giver (member) and join us in creating our vision for lives to no longer limited by Duchenne.

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Share Your Story

Raise your voice for Duchenne – share your experiences with us so we can share them with our community. Have a story you want to share?

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Make a Donation

Make a one off donation of £7.90 to fund our ongoing life changing work

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Find out more about World Duchenne Awareness Day

Find out more on the World Duchenne Organisation Website

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Turning Challenges into Change – Our Story with Action Duchenne

I was introduced to Action Duchenne by the Muscle Team in Newcastle shortly after Oliver’s diagnosis in 2017. In those early, overwhelming days, their support meant everything. Members of the Support Team would call just to let me talk, vent, cry — whatever I needed. They were simply there, and that’s why I choose to support them every …

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Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it”  Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

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