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  • Challenge 79 for World Duchenne Awareness Day
  • About Us
    • Our vision
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Mental Health Awareness Week 2025
    • Science on Tour
    • Support Calendar – What’s On
    • Support for you and your family
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • SAVE THE DATE for the Action Duchenne Annual International Conference 2025
    • Highlights from the Annual Action Duchenne Annual International 2024
    • Annual International Conference 2023 Video Recordings
    • Annual International Conference 2022 Recordings
      • Adults with Duchenne
      • Growing up with Duchenne
      • The Duchenne Journey
      • What is new in Duchenne research?
  • News, Webinars and Blogs
    • News
    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
  • Support Us
    • Help Make a Life Beyond Duchenne Possible – Every Month
    • Fundraising Events and Challenges
    • Take on a challenge for Duchenne
    • Shop

World Duchenne Awareness Day 2024

You are here: Home / World Duchenne Awareness Day 2024
World Duchenne Awareness Day 2024

World Duchenne Awareness Day 2024

With just less than a month to go until World Duchenne Awareness Day, what can you do to Raise Your Voice for Duchenne?

World Duchenne Awareness Day unites the global Duchenne community annually for advocacy, action and change. This year is a monumental milestone as it marks the first year that the United Nations have officially designated 7th September as World Duchenne Awareness Day.

Duchenne Awareness Day is held on the 7th September each year to honour the 79 exons on the dystrophin gene. An error on any one of these exons causes Duchenne. 

We need YOU to come together alongside us to fight for the voices of everyone living with Duchenne.

What can YOU do this World Duchenne Awareness Day?

Challenge 79

Join in Action Duchenne’s Challenge 79 as an individual or a team.

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Challenge 79 for Schools

Enter Challenge 79 as a school – we are offering all schools a visit from our Science education team plus you can also enter our design competitions.

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Become a Member

Become a monthly giver (member) and join us in creating our vision for lives to no longer limited by Duchenne.

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Share Your Story

Raise your voice for Duchenne – share your experiences with us so we can share them with our community. Have a story you want to share?

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Make a Donation

Make a one off donation of £7.90 to fund our ongoing life changing work

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Find out more about World Duchenne Awareness Day

Find out more on the World Duchenne Organisation Website

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