“Holding it together when I was speaking at the Newly Diagnosed family event” was one of my colleague’s proudest accomplishments this week. We were …
Hi everyone! It’s been wonderful to see all your registrations coming through this week for the pre-conference event for Newly Diagnosed families and …
Calling all LEGO master builders We are super excited to launch the second annual Action Duchenne LEGO Quest. What you need to …
A big welcome to you all! This is my first blog piece in the run up to the Action Duchenne International Conference! Many of you will know that I’m …
Article by Victoria Young, Engagement and Support Officer This Sunday 3rd October we have four runners taking on the London Marathon and five …
September has been an absolutely amazing month for #TeamAD! Mudder in memory of Thomas The start of September was a muddy one! Adam and …
Last weekend, I had the utter privilege of travelling to Northern Ireland to visit one of our incredible Duchenne families and their community of …
This weekend marked the culmination of months of planning and preparation by the dedicated community around Niall, Deborah and Kevin O’Doherty from …
Blog by Florence Boulton, National Director Welcome to this month’s blog, the most part written during our steaming hot heat-wave, and most …
A big thank you and congratulations to new Duchenne parents Molly Pitts and Zak Denny who organised the hugely successful 'First Steps 7 mile walk' …
Matthew Deeming loves his running. This year he wanted to set his most ambitious goal yet by aiming to run the Northumberland Coastal Path in its …
A blog by Lyndsey Kaye | Admin Volunteer | Duchenne Mum Thump-thump, thump-thump, thump-thump…. the sound of a heartbeat. It reassures us that …
