Hear From Our Community

Victoria’s blog: Congratulations and THANK YOU to our Captain Tom 100 Heroes

7 May 2021 by Victoria Edwards

Last weekend our Captain Tom 100 Heroes took on some very special challenges to help raise money for Action Duchenne. Mary Down, whose grandson …

Victoria’s blog: Congratulations and THANK YOU to our Captain Tom 100 HeroesRead More

Shining a spotlight on Harry and Ben

4 May 2021 by Samantha

Over the coming months we'll be sharing the stories of our incredible virtual and in person London Marathon runners. We are delighted to introduce …

Shining a spotlight on Harry and BenRead More

Diagnosis, support and fundraising

16 April 2021 by Lizzie Cox

By Lyndsey Kaye Riley was just 3 years old when he was diagnosed with Duchenne. There was no history of it in my family, so it came as such a …

Diagnosis, support and fundraisingRead More

Treasuring each day

1 April 2021 by Lizzie Cox

By Scott Turnbull. When Oakley was diagnosed with DMD we were looking at possible autism or ADHD as he was not meeting milestones. At 3 years …

Treasuring each dayRead More

How on earth have we done a year in lockdown?

31 March 2021 by Lizzie Cox

By Ashley Lawmon. 12 whole months ago we took our family and locked them away from the world thinking 'ahh few months and we will be free again…' …

How on earth have we done a year in lockdown?Read More

How did I get here?

30 March 2021 by Lizzie Cox

By Jessica Breeze Sometimes in life, do you ever wonder – how did I get here? I mean at a particular moment, point in time. This is what I’m …

How did I get here?Read More

Uplifting and empowering

24 March 2021 by Lynnette

By Florence Boulton, National Director This month seems to have been action packed for us here at Action Duchenne. You would think that after a …

Uplifting and empoweringRead More

My first two magical weeks at Action Duchenne

23 March 2021 by Samantha

By Victoria Young If you had told me 8 months ago that I would be a Support and Engagement Coordinator at Action Duchenne I really wouldn't have …

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Changing Places change lives

17 March 2021 by Lynnette

By Lizzie Deeble, Lead Volunteer, Contributor and Duchenne Mum Last week, the government allocated £30 million in funding to install Changing …

Changing Places change livesRead More

A message from Florence Boulton on Rare Disease Day 2021

28 February 2021 by Lynnette

Dear International Duchenne Community, Today, we take a moment from our daily lives to raise awareness about our community and share what it means …

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What a difference a year makes

10 February 2021 by Lynnette

Blog by Florence Boulton, National Director This month marks the anniversary of the day I joined Action Duchenne. I remember it well, at the Annual …

What a difference a year makesRead More

Holidays after lockdown

15 December 2020 by Lynnette

A blog by Florence Boulton, National Director (Robin by Duchenne Grandad, Julian Smith jpsart.net) As the nights are drawing in and the …

Holidays after lockdownRead More

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