By Lyndsey Kaye Riley was just 3 years old when he was diagnosed with Duchenne. There was no history of it in my family, so it came as such a …
By Scott Turnbull. When Oakley was diagnosed with DMD we were looking at possible autism or ADHD as he was not meeting milestones. At 3 years …
By Ashley Lawmon. 12 whole months ago we took our family and locked them away from the world thinking 'ahh few months and we will be free again…' …
By Jessica Breeze Sometimes in life, do you ever wonder – how did I get here? I mean at a particular moment, point in time. This is what I’m …
By Florence Boulton, National Director This month seems to have been action packed for us here at Action Duchenne. You would think that after a …
By Victoria Young If you had told me 8 months ago that I would be a Support and Engagement Coordinator at Action Duchenne I really wouldn't have …
By Lizzie Deeble, Lead Volunteer, Contributor and Duchenne Mum Last week, the government allocated £30 million in funding to install Changing …
Dear International Duchenne Community, Today, we take a moment from our daily lives to raise awareness about our community and share what it means …
A message from Florence Boulton on Rare Disease Day 2021Read More
Blog by Florence Boulton, National Director This month marks the anniversary of the day I joined Action Duchenne. I remember it well, at the Annual …
A blog by Florence Boulton, National Director (Robin by Duchenne Grandad, Julian Smith jpsart.net) As the nights are drawing in and the …
A blog by National Director, Florence Boulton ….and we’re back down to earth after the crazy (but exciting) weeks in the run up to our 2020 …
