For the last 10 days Samantha Lews has run 10km every day! Her reason for running is her friends son Lewis, who is 13 and lives with Duchenne …
Last weekend our Captain Tom 100 Heroes took on some very special challenges to help raise money for Action Duchenne. Mary Down, whose grandson …
Victoria’s blog: Congratulations and THANK YOU to our Captain Tom 100 HeroesRead More
Over the coming months we'll be sharing the stories of our incredible virtual and in person London Marathon runners. We are delighted to introduce …
By Lyndsey Kaye Riley was just 3 years old when he was diagnosed with Duchenne. There was no history of it in my family, so it came as such a …
By Scott Turnbull. When Oakley was diagnosed with DMD we were looking at possible autism or ADHD as he was not meeting milestones. At 3 years …
By Ashley Lawmon. 12 whole months ago we took our family and locked them away from the world thinking 'ahh few months and we will be free again…' …
By Jessica Breeze Sometimes in life, do you ever wonder – how did I get here? I mean at a particular moment, point in time. This is what I’m …
By Florence Boulton, National Director This month seems to have been action packed for us here at Action Duchenne. You would think that after a …
By Victoria Young If you had told me 8 months ago that I would be a Support and Engagement Coordinator at Action Duchenne I really wouldn't have …
By Lizzie Deeble, Lead Volunteer, Contributor and Duchenne Mum Last week, the government allocated £30 million in funding to install Changing …
Dear International Duchenne Community, Today, we take a moment from our daily lives to raise awareness about our community and share what it means …
A message from Florence Boulton on Rare Disease Day 2021Read More
Blog by Florence Boulton, National Director This month marks the anniversary of the day I joined Action Duchenne. I remember it well, at the Annual …
