Hear From Our Community

Article by Sarah | Duchenne Mum After my son was diagnosed last June I started following Action Duchenne on social media. I decided to join a Zoom …

Peer-to-peer support – feeling positive for the futureRead More

Article by Ashley Lawmon, Duchenne Mum If you're anything like me this word fills you with dread and fear. I put that conversation off for years! …

That word…HospiceRead More

Article by Duchenne Mum Ashley Lawmon Who here has been told that your child won't do this and won't do that? Because I know I did. He won't jump, …

Limitations…Read More

Two years ago, a combination of 40th birthdays and "let's do it" had persuaded a group of us who run regularly together to attempt a marathon. We …

2 Years and 26.2 MilesRead More

This Mother's Day we want to acknowledge all of the amazing mums in our Duchenne community. We are celebrating the Duchenne mums in every and any …

Celebrating all Duchenne MumsRead More

Over the past few weeks, we have been able to send 40 of our families a free copy of The Abilities in Me Duchenne muscular dystrophy book, thanks to …

Digby receives his copy of The Abilities in Me DMD BookRead More

During Spring and Summer 2020, I personally spoke to over 2,000 Duchenne families, offering each of them bespoke care and support to suit their …

Friday Hive blog by SamRead More