This article is written by a Duchenne Mum, Ruth, about her experience with Action Duchenne's peer-to-peer support. When my son was diagnosed with …
In 2021 Joshua graduated from UCLan with a first-class BA Hons in Film and Media Studies. He has created documentaries, films and is an avid …
Article by Sarah | Duchenne Mum After my son was diagnosed last June I started following Action Duchenne on social media. I decided to join a Zoom …
Peer-to-peer support – feeling positive for the futureRead More
Article by Ashley Lawmon, Duchenne Mum If you're anything like me this word fills you with dread and fear. I put that conversation off for years! …
Article by Duchenne Mum Ashley Lawmon Who here has been told that your child won't do this and won't do that? Because I know I did. He won't jump, …
Article by Jess Breeze | Duchenne Mum | Volunteer On the 19th March I had the privilege to spend another day with the Sporting Bears. The …
Two years ago, a combination of 40th birthdays and "let's do it" had persuaded a group of us who run regularly together to attempt a marathon. We …
It is not everyday that we have a premier community football club show us their support, but on Saturday 26th March Beaconsfield Town FC (aka the …
This Mother's Day we want to acknowledge all of the amazing mums in our Duchenne community. We are celebrating the Duchenne mums in every and any …
Over the past few weeks, we have been able to send 40 of our families a free copy of The Abilities in Me Duchenne muscular dystrophy book, thanks to …
Digby receives his copy of The Abilities in Me DMD BookRead More
A message from our National Director, Florence Boulton It was 2 years ago when I first joined my new team around a table in a meeting room in …
by Rebecca Smith SENCO/INCO Rebecca Smith oversees provision at St. Mary's Primary Academy in Cambridgeshire to ensure that all children within the …
Securing the right support for your child in schoolRead More
