Hear From Our Community

Fundraising total announced for GP’s epic 362 mile run

January 20, 2022 by Lynnette

This week, Duchenne family and long-standing Action Duchenne supporters, the O'Doherty's of Derry, Ireland announced they have raised an incredible …

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Farewell 2021, welcome 2022

January 14, 2022 by Lynnette

A message from our National Director, Florence Boulton Another year has flown by! A very Happy New Year to all my colleagues, partners, families …

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Long-standing Trustee launches charity album

January 14, 2022 by Lynnette

ACTION Duchenne’s longest-serving Trustee, Mark Silverman, has today launched his lock-down inspired album ‘Markin’ Time’. Taking vocals for …

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Indoor Skydive

January 7, 2022 by Victoria Edwards

This Christmas I wanted to make sure my son Dougie and his younger sister, Allie, were given the gift of an amazing experience. On Christmas Day they …

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It’s Dip Time!

January 7, 2022 by Victoria Edwards

We want to say a big splashy thank you to Karen and her family for braving the sea on Boxing Day. Their continued support means so much to …

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Happy Holidays from our National Director

December 16, 2021 by Lynnette

It’s beginning to look a lot like Christmas! This week, we’ve launched our Action Duchenne Santa’s Grotto; a little thank you to our …

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Sound Force & The Velvet Tones: Concerts for Action Duchenne

December 10, 2021 by Victoria Edwards

We want to say a big thank you to Sound Force Big Band and The Velvet Tones for the amazing concerts they put on for Action Duchenne in December and …

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