This time last year, I was proudly clicking ‘share’ on the impact report for our 2020 Christmas Campaign. We’d sprinkled a touch of magic at a time …
Behind the scenes at Action Duchenne’s Santa’s GrottoRead More
Our community is at the heart of our work. Read our blogs to find out more about the many aspects of a journey with Duchenne muscular dystrophy directly from those who are living it.
Have you got a story to tell? We’d love to share it – please get in touch to find out more: lizzie.cox@actionduchenne.org

24 January 2022 by Lynnette
This time last year, I was proudly clicking ‘share’ on the impact report for our 2020 Christmas Campaign. We’d sprinkled a touch of magic at a time …
Behind the scenes at Action Duchenne’s Santa’s GrottoRead More

20 January 2022 by Lynnette
This week, Duchenne family and long-standing Action Duchenne supporters, the O'Doherty's of Derry, Ireland announced they have raised an incredible …
Fundraising total announced for GP’s epic 362 mile runRead More

14 January 2022 by Lynnette
A message from our National Director, Florence Boulton Another year has flown by! A very Happy New Year to all my colleagues, partners, families …

14 January 2022 by Lynnette
ACTION Duchenne’s longest-serving Trustee, Mark Silverman, has today launched his lock-down inspired album ‘Markin’ Time’. Taking vocals for …

7 January 2022 by Victoria Edwards
This Christmas I wanted to make sure my son Dougie and his younger sister, Allie, were given the gift of an amazing experience. On Christmas Day they …

7 January 2022 by Victoria Edwards
We want to say a big splashy thank you to Karen and her family for braving the sea on Boxing Day. Their continued support means so much to …

16 December 2021 by Lynnette
It’s beginning to look a lot like Christmas! This week, we’ve launched our Action Duchenne Santa’s Grotto; a little thank you to our …

10 December 2021 by Victoria Edwards
We want to say a big thank you to Sound Force Big Band and The Velvet Tones for the amazing concerts they put on for Action Duchenne in December and …
Sound Force & The Velvet Tones: Concerts for Action DuchenneRead More

30 November 2021 by Lynnette
Article by Jess Breeze | Duchenne Mum | Volunteer I have worked with my colleague Kim for nearly 5 years, I’ve known she was ‘into her cars’ and I …

19 November 2021 by Lizzie Cox
Blog by Florence Boulton, National Director - written in Cambridge just after we finished delivering the Action Duchenne International Conference …

15 November 2021 by Samantha
Wow, what a weekend we have had, thank you so much for joining us! We are excited to announce the winners of the Lego Quest 2021, supported by The …

10 November 2021 by Lynnette
Hello again everyone! I’m glad to be back sharing with you my updates and insights from the Conference planning coal-face! The newly …
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