by Florence, National Director The past 18 months in lockdown have been undoubtedly difficult for most and devastating for many. What has come out …
Edinburgh Marathon ‘Our run for Ben’
I took up running, as a kind of therapy, shortly after Ben died. I was kind of cajoled on by colleagues who had run the London Marathon in …
Duchenne Nana walks 100 miles
A big congratulations to Linda Smith for completing her 100 mile walking challenge this week! She set herself the challenge to raise money for Action …
An amazing 10 in 10 for Action Duchenne
For the last 10 days Samantha Lews has run 10km every day! Her reason for running is her friends son Lewis, who is 13 and lives with Duchenne …
Victoria’s blog: Congratulations and THANK YOU to our Captain Tom 100 Heroes
Last weekend our Captain Tom 100 Heroes took on some very special challenges to help raise money for Action Duchenne. Mary Down, whose grandson …
Victoria’s blog: Congratulations and THANK YOU to our Captain Tom 100 HeroesRead More
Shining a spotlight on Harry and Ben
Over the coming months we'll be sharing the stories of our incredible virtual and in person London Marathon runners. We are delighted to introduce …
Diagnosis, support and fundraising
By Lyndsey Kaye Riley was just 3 years old when he was diagnosed with Duchenne. There was no history of it in my family, so it came as such a …
Treasuring each day
By Scott Turnbull. When Oakley was diagnosed with DMD we were looking at possible autism or ADHD as he was not meeting milestones. At 3 years …
How on earth have we done a year in lockdown?
By Ashley Lawmon. 12 whole months ago we took our family and locked them away from the world thinking 'ahh few months and we will be free again…' …
How did I get here?
By Jessica Breeze Sometimes in life, do you ever wonder – how did I get here? I mean at a particular moment, point in time. This is what I’m …
Uplifting and empowering
By Florence Boulton, National Director This month seems to have been action packed for us here at Action Duchenne. You would think that after a …
My first two magical weeks at Action Duchenne
By Victoria Young If you had told me 8 months ago that I would be a Support and Engagement Coordinator at Action Duchenne I really wouldn't have …
