When Thomas was around 7 years old, Adam remembers him having his appendix out. Adam arranged for a card to be signed by the whole school to wish him …
Before I start my usual blog this month, I wanted to acknowledge a Duchenne family who have been through immeasurable devastation this week. On behalf …
A blog by Lyndsey Kaye, Duchenne Mum "Today is my eldest son’s 15th birthday, and it has made me reflect somewhat and come to a bit of a …
Dan Brown has been running endurance events since January last year to raise money for Action Duchenne. On 5th June he completed his last endurance …
Dad completes amazing endurance event challenge for Action DuchenneRead More
On Sunday 30th May Ian is running the Edinburgh Marathon for Action Duchenne. Ian has been inspired to run 26.2 miles after seeing the challenges …
by Florence, National Director The past 18 months in lockdown have been undoubtedly difficult for most and devastating for many. What has come out …
I took up running, as a kind of therapy, shortly after Ben died. I was kind of cajoled on by colleagues who had run the London Marathon in …
A big congratulations to Linda Smith for completing her 100 mile walking challenge this week! She set herself the challenge to raise money for Action …
For the last 10 days Samantha Lews has run 10km every day! Her reason for running is her friends son Lewis, who is 13 and lives with Duchenne …
Last weekend our Captain Tom 100 Heroes took on some very special challenges to help raise money for Action Duchenne. Mary Down, whose grandson …
Victoria’s blog: Congratulations and THANK YOU to our Captain Tom 100 HeroesRead More
Over the coming months we'll be sharing the stories of our incredible virtual and in person London Marathon runners. We are delighted to introduce …
By Lyndsey Kaye Riley was just 3 years old when he was diagnosed with Duchenne. There was no history of it in my family, so it came as such a …
