By Alex James Hello everyone, I hope you are all very well. This vlog was specially requested by Action Duchenne of me in the flesh, …
Hope, music and making things happen despite DuchenneRead More
Things like this dont happen….do they?
by Kieron Sales It's June 2018, I'm in Manchester with my wife, Louise. She's doing a bit of clothes shopping and trying some outfits on. I …
2 Years since the Diagnosis: Positive Experiences
By David Taylor. In May 2018, our son Edward (who was 2 ½ at the time) was diagnosed with Duchenne Muscular Dystrophy. I have struggled with many …
Staying active during lockdown
By Daniel Miller Since I was small, I have always been fascinated by history and have enjoyed visiting museums, with lots of great museums and …
One point at a time, that’s the idea
By Bryan Purdue Hi everyone, hope you are all well and safe! I wanted to discuss what’s happening in the world from my point of view. …
Fundraisers adapt training during COVID-19
Jonathan and Mike are two keen cyclists who decided to take on a 360km tour round the regional offices of their company, Taylor Wimpey! Inspired …
Helping you through COVID-19
Support and resources for our Duchenne community A message from the National Director, Florence Boulton With the impact of COVID-19 on our …
#DAY18OFISOLATION
A blog by Duchenne Mum - Ashley 18 days ago I made the decision for my family to take everyone out of school/nursery, some may think I was a little …
Isolation for the nation
A blog by Duchenne Dad, Darren Well, CV19 is here, so what do we do about it, how will we fill our time, how do we alleviate the boredom of self …
Supporting families – Lynnette’s perspective
In April 2016, 6 months after my son was diagnosed with Duchenne muscular dystrophy, I joined the Action Duchenne team. I felt I had to do something …
Hundreds inspired by Duchenne Science on Tour project
We recognised that keeping up with research news can be challenging, with news stories and press releases using language that's much more …
Hundreds inspired by Duchenne Science on Tour projectRead More
My first month at Action Duchenne
When the National Director role at Action Duchenne came up last November and I started reading about all the work the charity does, it was inspiring …
