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  • Challenge 79
  • About Us
    • Our vision
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Support for you and your family
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Action Duchenne Annual International Conference 2025
    • Highlights from the Annual Action Duchenne Annual International 2024
    • Annual International Conference 2023 Video Recordings
    • Annual International Conference 2022 Recordings
      • Adults with Duchenne
      • Growing up with Duchenne
      • The Duchenne Journey
      • What is new in Duchenne research?
  • News, Webinars and Blogs
    • News
    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
  • Support Us
    • World Duchenne Awareness Day 2025
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Conference

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The Action Duchenne Conference was a game-changer for me as a new Duchenne dad.

August 21, 2024 by Lizzie Cox

The Action Duchenne Conference was a game-changer for me as a new Duchenne dad. It gave me the knowledge I needed through clear talks on treatment and …

The Action Duchenne Conference was a game-changer for me as a new Duchenne dad.Read More

Submit Your Questions to be Answered by Pharmaceutical Companies

July 9, 2024 by John Marrin

…

Submit Your Questions to be Answered by Pharmaceutical CompaniesRead More

Physiotherapy in Non-Ambulant Duchenne Muscular Dystrophy

February 2, 2024 by Lizzie Cox

Question and Answer session about physiotheraphy and treatment in non-ambulant DMD …

Physiotherapy in Non-Ambulant Duchenne Muscular DystrophyRead More

Question and Answer session with Pharmaceutical Companies

February 2, 2024 by Lizzie Cox

Action Duchenne invited pharmaceutical companies to participate in this question and answer session. …

Question and Answer session with Pharmaceutical CompaniesRead More

Physiotherapy in Ambulant Duchenne Muscular Dystrophy

February 2, 2024 by Lizzie Cox

An overview of how physiotherapy techniques are used to measure, monitor and help treat ambulant DMD patients. …

Physiotherapy in Ambulant Duchenne Muscular DystrophyRead More

Bone Health and Puberty Delay in DMD and Emergency Care

February 2, 2024 by Lizzie Cox

An overview of the assessment and management of puberty delay, factors contributing to bone health and management, and the emergency management of DMD …

Bone Health and Puberty Delay in DMD and Emergency CareRead More

Swallowing in Duchenne: An update on Standards of Care

February 2, 2024 by Lizzie Cox

An update on swallowing and gastrointestinal standards of care: from the lips to the stomach. …

Swallowing in Duchenne: An update on Standards of CareRead More

Overview of Cardiac Care

February 2, 2024 by Lizzie Cox

An overview of Duchenne muscular dystrophy and associated cardiac conditions and the associated diagnostic methods and care. …

Overview of Cardiac CareRead More

Overview of Respiratory Care

February 2, 2024 by Lizzie Cox

An overview of duchenne muscular dystrophy and associated respiratory conditions and the associated diagnostic methods and care. …

Overview of Respiratory CareRead More

Latest Clinical Trial Updates

February 2, 2024 by Lizzie Cox

An update on the progress and findings of the latest therapeutic clinical trials …

Latest Clinical Trial UpdatesRead More

Overview of dystrophin restoring approaches

February 2, 2024 by Lizzie Cox

Overview of the role of dystrophin in Duchenne and Beckers MD, the therapeutic options and challenges in treating neuromuscular diseases. …

Overview of dystrophin restoring approachesRead More

Overview of inflammation and fibrosis reducing strategies

February 2, 2024 by Lizzie Cox

The role of inflammation and fibrosis in DMD myopathy and the latest therapeutic strategies for reducing muscle degeneration. …

Overview of inflammation and fibrosis reducing strategiesRead More

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