OVER the weekend of 13 and 14 November 2021, Action Duchenne welcomed families, researchers, clinicians and pharmaceutical companies from across the …
Action Duchenne International Conference embodies powerful Duchenne communityRead More
Lego Quest 2021 winners!
Wow, what a weekend we have had, thank you so much for joining us! We are excited to announce the winners of the Lego Quest 2021, supported by The …
It’s the final countdown!
Hello again everyone! I’m glad to be back sharing with you my updates and insights from the Conference planning coal-face! The newly …
Conference agenda, brochure and joining instructions
We are looking forward to welcoming you to this year's Conference. Flexibility The flexibility of the online platform means you can dip into …
Conference agenda, brochure and joining instructionsRead More
We are together, with you
“Holding it together when I was speaking at the Newly Diagnosed family event” was one of my colleague’s proudest accomplishments this week. We were …
Harry Hill invites you to our online event
Newly diagnosed event agenda and joining instructions
We are looking forward to welcoming you to the online support and information event THIS Saturday 23 October from 14.00 - 18.00 (GMT). This event is …
Newly diagnosed event agenda and joining instructionsRead More
Sam’s 2nd Conference blog
Hi everyone! It’s been wonderful to see all your registrations coming through this week for the pre-conference event for Newly Diagnosed families and …
LEGO Quest 2021
Calling all LEGO master builders We are super excited to launch the second annual Action Duchenne LEGO Quest. What you need to …
Sam’s Conference blog
A big welcome to you all! This is my first blog piece in the run up to the Action Duchenne International Conference! Many of you will know that I’m …
Your invitation to the newly diagnosed Duchenne family event
Taking place online on Saturday 23rd October 2021 from 14:00 - 18:00 GMT, this event is a chance for families who are new to the Duchenne community to …
Your invitation to the newly diagnosed Duchenne family eventRead More
Your invitation to our 20th Conference
Florence, National Director of Action Duchenne invites you to register for this year's Conference Register below for this year's Action Duchenne …
