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  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with Others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
  • Support Us

Conference

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Action Duchenne International Conference

August 17, 2022 by Lynnette

‘Educating, enabling and including’ is the theme of the unmissable 20th Action Duchenne International Conference, which launches this week. Bringing …

Action Duchenne International ConferenceRead More

International Conference and community

November 19, 2021 by Lizzie Cox

Blog by Florence Boulton, National Director - written in Cambridge just after we finished delivering the Action Duchenne International Conference …

International Conference and communityRead More

Action Duchenne International Conference embodies powerful Duchenne community

November 16, 2021 by Lynnette

OVER the weekend of 13 and 14 November 2021, Action Duchenne welcomed families, researchers, clinicians and pharmaceutical companies from across the …

Action Duchenne International Conference embodies powerful Duchenne communityRead More

Lego Quest 2021 winners!

November 15, 2021 by Samantha

Wow, what a weekend we have had, thank you so much for joining us! We are excited to announce the winners of the Lego Quest 2021, supported by The …

Lego Quest 2021 winners!Read More

It’s the final countdown!

November 10, 2021 by Lynnette

Hello again everyone! I’m glad to be back sharing with you my updates and insights from the Conference planning coal-face!  The newly …

It’s the final countdown!Read More

Conference agenda, brochure and joining instructions

November 4, 2021 by Lynnette

We are looking forward to welcoming you to this year's Conference. Flexibility The flexibility of the online platform means you can dip into …

Conference agenda, brochure and joining instructionsRead More

We are together, with you

November 2, 2021 by Lynnette

“Holding it together when I was speaking at the Newly Diagnosed family event” was one of my colleague’s proudest accomplishments this week. We were …

We are together, with youRead More

Harry Hill invites you to our online event

November 1, 2021 by Lynnette

…

Harry Hill invites you to our online eventRead More

Newly diagnosed event agenda and joining instructions

October 19, 2021 by Lynnette

We are looking forward to welcoming you to the online support and information event THIS Saturday 23 October from 14.00 - 18.00 (GMT). This event is …

Newly diagnosed event agenda and joining instructionsRead More

Sam’s 2nd Conference blog

October 14, 2021 by Samantha

Hi everyone! It’s been wonderful to see all your registrations coming through this week for the pre-conference event for Newly Diagnosed families and …

Sam’s 2nd Conference blogRead More

LEGO Quest 2021

October 12, 2021 by Lynnette

Calling all LEGO master builders We are super excited to launch the second annual Action Duchenne LEGO Quest. What you need to …

LEGO Quest 2021Read More

Sam’s Conference blog

October 6, 2021 by Lynnette

A big welcome to you all! This is my first blog piece in the run up to the Action Duchenne International Conference! Many of you will know that I’m …

Sam’s Conference blogRead More

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