Taking place online on Saturday 23rd October 2021 from 14:00 - 18:00 GMT, this event is a chance for families who are new to the Duchenne community to …
Your invitation to the newly diagnosed Duchenne family eventRead More
Your invitation to our 20th Conference
Florence, National Director of Action Duchenne invites you to register for this year's Conference Register below for this year's Action Duchenne …
Register for the virtual conference 2021
Following the success of last year's virtual event, this year’s Action Duchenne International Conference will again take place virtually on 13 and 14 …
I have so much to share with you
A blog by National Director, Florence Boulton ….and we’re back down to earth after the crazy (but exciting) weeks in the run up to our 2020 …
LEGO Quest
Helena sends message of support for our big event
Our Patron and exceptional actress, Helena Bonham Carter sent us this message to share with you; "I am proud to invite you to this year's Action …
Virtual guided tour of the Conference platform
Watch Lynnette's short video showing you round the Conference platform. In the video you will find out How to registerHow to log inUpdate …
Support with navigating school
Book a 1-2-1 session with our two experts, to discuss and ask for support around the school/college process for your young person, advice on EHCPs and …
Take part in small group sessions at the Conference
At the Action Duchenne International Conference, not only will you be able to chat with experts during the weekend, ask your questions through the Q …
Take part in small group sessions at the ConferenceRead More
Newly diagnosed event – watch recordings
We were delighted to welcome so many families from across the globe to our virtual event for newly diagnosed families or those who are newcomers to …
A space to talk
It is quite usual for people to be in two minds about starting counselling. This is one of the reasons why we're offering our families the …
Conference platform is LIVE
If you have already registered your place at the Action Duchenne International Conference, you now have access to the LIVE platform. Things we …
