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  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
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    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with Others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
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Conference

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Recognising the power of our community

October 12, 2020 by Lynnette

A message from the National Director, Florence Boulton The past four weeks, since I last wrote to you all, has been a rollercoaster of extreme …

Recognising the power of our communityRead More

Calling all gamers!

October 12, 2020 by Lynnette

Here's your chance to have a say in the 'gaming at the Conference' session for the virtual Action Duchenne International Conference 2020. We'd like …

Calling all gamers!Read More

Webinar has life-changing impact on Duchenne family

October 5, 2020 by Lynnette

"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …

Webinar has life-changing impact on Duchenne familyRead More

Newly diagnosed families special event

October 1, 2020 by Lynnette

When you receive the diagnosis of Duchenne muscular dystrophy, the amount of information you receive seems overwhelming.  Here at Action …

Newly diagnosed families special eventRead More

New sessions announced

September 28, 2020 by Lynnette

This year's Action Duchenne International Conference is virtual and you are invited!  Tickets are FREE, all are welcome and we'll be sharing …

New sessions announcedRead More

Invitation for the international Duchenne community

September 17, 2020 by Lynnette

This year, the Action Duchenne International Conference is taking place ONLINE! Hear from top international Duchenne experts in a content-packed …

Invitation for the international Duchenne communityRead More

Gene therapy experts announced

September 17, 2020 by Lynnette

Have we got an exciting line up of speakers and sessions for you! We will be announcing more details over the coming days and weeks. But for …

Gene therapy experts announcedRead More

Share your experiences to help others

August 20, 2020 by Lynnette

As the Action Duchenne International Conference 2020 is virtual this year, we have the opportunity to do things a little differently! As well as an …

Share your experiences to help othersRead More

The 2020 Action Duchenne International Conference Registration is now OPEN!

July 29, 2020 by Lynnette

We are delighted to announce that our Action Duchenne International Conference 2020 (‘the Conference’) is now open for registration. The event …

The 2020 Action Duchenne International Conference Registration is now OPEN!Read More

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