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  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • In-Person Support Events
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us

News

You are here: Home / News

2021 Annual General Meeting

January 27, 2021 by Lynnette

18:00 - 19:00 GMT Tuesday 23 February 2021 via Zoom The Trustees of Action Duchenne would like to express their gratitude for the continued support …

2021 Annual General MeetingRead More

Duchenne Science LIVE launches today

January 26, 2021 by Lynnette

Families living with Duchenne muscular dystrophy (DMD) face many challenges, one being keeping up with developments in Duchenne research. Our new …

Duchenne Science LIVE launches todayRead More

Handmade cards by Bella

January 12, 2021 by Samantha

Action Duchenne is a charity close to mine and my family’s heart. About two years ago I was part of a fundraiser at a Newcastle Falcons game and I …

Handmade cards by BellaRead More

YouTube channel for Duchenne science

January 12, 2021 by Lynnette

We know it is hard for families to keep up with research developments in Duchenne muscular dystrophy. After the success of the 'Science on Tour' …

YouTube channel for Duchenne scienceRead More

New support sessions to help Duchenne families cope with post-Christmas lock-down

January 12, 2021 by Lynnette

Since Christmas, we have heard from many Duchenne families that they are struggling to keep their spirits up. January’s lock-down has come at a …

New support sessions to help Duchenne families cope with post-Christmas lock-downRead More

Run Local (or not!)

January 12, 2021 by Samantha

We’re delighted to partner with RunForCharity to help you take part in hundreds of events. Simply select your region below to find events …

Run Local (or not!)Read More

Support Action Duchenne this January and Save Money with My Favourite Voucher Codes

January 11, 2021 by Samantha

This January, Action Duchenne has teamed up with a money saving website with a twist, My Favourite Voucher Codes. We’re up for winning 20% of the …

Support Action Duchenne this January and Save Money with My Favourite Voucher CodesRead More

Project Engagement & Support Coordinator role

January 5, 2021 by Lynnette

Remote working21 hours per week6 months contract£18-20k pro rataLived experience of Duchenne desirable criteria Action Duchenne knows that there is …

Project Engagement & Support Coordinator roleRead More

Digital Marketing Coordinator (Support Projects) role

January 5, 2021 by Lynnette

Remote working21 hours per week6 months contract£18-20k pro rataLived experience of Duchenne desirable criteria Action Duchenne knows that there is …

Digital Marketing Coordinator (Support Projects) roleRead More

Light up lockdown

January 5, 2021 by Lynnette

We understand absolutely and completely how many of you are feeling today. This lock-down has come at a notoriously difficult time in the year, …

Light up lockdownRead More

Christmas Show with Bertie Slippers

December 24, 2020 by Samantha

Our friend Bertie Slippers, nearly the world's best children's entertainer, has recorded a very special show for our wonderful families to …

Christmas Show with Bertie SlippersRead More

Helena sends a Christmas message

December 22, 2020 by Samantha

Our Patron and phenomenal actress, Helena Bonham Carter sent us this message to share with you; 'Wishing you all a happy and safe Christmas. I …

Helena sends a Christmas messageRead More

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Action Duchenne
5th Floor, Mariner House
62 Prince Street
Bristol
BS1 4QD

07535 498 506
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