We understand absolutely and completely how many of you are feeling today. This lock-down has come at a notoriously difficult time in the year, …
Christmas Show with Bertie Slippers
Our friend Bertie Slippers, nearly the world's best children's entertainer, has recorded a very special show for our wonderful families to …
Helena sends a Christmas message
Our Patron and phenomenal actress, Helena Bonham Carter sent us this message to share with you; 'Wishing you all a happy and safe Christmas. I …
Action Duchenne sprinkles a touch of magic for brave Duchenne families
The hundreds of children, young people and adults living with Duchenne muscular dystrophy (DMD) face many challenges, which have been exacerbated by …
Action Duchenne sprinkles a touch of magic for brave Duchenne familiesRead More
Holidays after lockdown
A blog by Florence Boulton, National Director (Robin by Duchenne Grandad, Julian Smith jpsart.net) As the nights are drawing in and the …
It’s all about the why?
Watch our short video produced for the virtual Action Duchenne International Conference 2020. Thank you to everyone who sent us their messages of …
Christmas Truckers Charity Convoy
We are excited and super proud to share the story of two amazing gents; Danny Whitmore and Nathan Cowling, who are responsible for the phenomenally …
Apply for a charity place
Thank you for your interest in taking part in the 2021 Virgin Money London Marathon for Action Duchenne. The London Marathon is the biggest …
I have so much to share with you
A blog by National Director, Florence Boulton ….and we’re back down to earth after the crazy (but exciting) weeks in the run up to our 2020 …
Closing remarks from the Conference
Action Duchenne 2020 International Conference Closing Remarks by Florence Boulton, National Director It has been truly a great couple of days. …
LEGO Quest
Helena sends message of support for our big event
Our Patron and exceptional actress, Helena Bonham Carter sent us this message to share with you; "I am proud to invite you to this year's Action …
