Thank you for your interest in taking part in the 2021 Virgin Money London Marathon for Action Duchenne. The London Marathon is the biggest …
I have so much to share with you
A blog by National Director, Florence Boulton ….and we’re back down to earth after the crazy (but exciting) weeks in the run up to our 2020 …
Closing remarks from the Conference
Action Duchenne 2020 International Conference Closing Remarks by Florence Boulton, National Director It has been truly a great couple of days. …
LEGO Quest
Helena sends message of support for our big event
Our Patron and exceptional actress, Helena Bonham Carter sent us this message to share with you; "I am proud to invite you to this year's Action …
Lockdown 2 – easy to understand COVID-19 advice for Duchenne families
The Government has released guidelines for the second English lockdown. Some people living with Duchenne muscular dystrophy will be in the …
Lockdown 2 – easy to understand COVID-19 advice for Duchenne familiesRead More
Virtual guided tour of the Conference platform
Watch Lynnette's short video showing you round the Conference platform. In the video you will find out How to registerHow to log inUpdate …
Support with navigating school
Book a 1-2-1 session with our two experts, to discuss and ask for support around the school/college process for your young person, advice on EHCPs and …
Take part in small group sessions at the Conference
At the Action Duchenne International Conference, not only will you be able to chat with experts during the weekend, ask your questions through the Q …
Take part in small group sessions at the ConferenceRead More
Newly diagnosed event – watch recordings
We were delighted to welcome so many families from across the globe to our virtual event for newly diagnosed families or those who are newcomers to …
A space to talk
It is quite usual for people to be in two minds about starting counselling. This is one of the reasons why we're offering our families the …
Coronavirus (COVID-19) advice
During the COVID-19 outbreak in the UK, we provided regular updates to the Duchenne community. This page received over 40,000 unique page views from …
