Watch Lynnette's short video showing you round the Conference platform. In the video you will find out How to registerHow to log inUpdate …
Support with navigating school
Book a 1-2-1 session with our two experts, to discuss and ask for support around the school/college process for your young person, advice on EHCPs and …
Take part in small group sessions at the Conference
At the Action Duchenne International Conference, not only will you be able to chat with experts during the weekend, ask your questions through the Q …
Take part in small group sessions at the ConferenceRead More
Newly diagnosed event – watch recordings
We were delighted to welcome so many families from across the globe to our virtual event for newly diagnosed families or those who are newcomers to …
A space to talk
It is quite usual for people to be in two minds about starting counselling. This is one of the reasons why we're offering our families the …
Coronavirus (COVID-19) advice
During the COVID-19 outbreak in the UK, we provided regular updates to the Duchenne community. This page received over 40,000 unique page views from …
Conference platform is LIVE
If you have already registered your place at the Action Duchenne International Conference, you now have access to the LIVE platform. Things we …
Calling all gamers!
Here's your chance to have a say in the 'gaming at the Conference' session for the virtual Action Duchenne International Conference 2020. We'd like …
Action Duchenne gains lottery funding
We are delighted to announce that we have been awarded a grant from The National Lottery Community Fund. Funding from the Coronavirus …
Webinar has life-changing impact on Duchenne family
"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …
Webinar has life-changing impact on Duchenne familyRead More
Duchenne Grandparents’ evening was a success
Last week, we invited Duchenne Grandparents to come together to share their experiences and meet others in a similar situation. It was a …
Newly diagnosed families special event
When you receive the diagnosis of Duchenne muscular dystrophy, the amount of information you receive seems overwhelming. Here at Action …
