The hundreds of children, young people and adults living with Duchenne muscular dystrophy (DMD) face many challenges, which have been exacerbated by …
Action Duchenne sprinkles a touch of magic for brave Duchenne familiesRead More
Holidays after lockdown
A blog by Florence Boulton, National Director (Robin by Duchenne Grandad, Julian Smith jpsart.net) As the nights are drawing in and the …
It’s all about the why?
Watch our short video produced for the virtual Action Duchenne International Conference 2020. Thank you to everyone who sent us their messages of …
Christmas Truckers Charity Convoy
We are excited and super proud to share the story of two amazing gents; Danny Whitmore and Nathan Cowling, who are responsible for the phenomenally …
Apply for a charity place
Thank you for your interest in taking part in the 2021 Virgin Money London Marathon for Action Duchenne. The London Marathon is the biggest …
I have so much to share with you
A blog by National Director, Florence Boulton ….and we’re back down to earth after the crazy (but exciting) weeks in the run up to our 2020 …
Closing remarks from the Conference
Action Duchenne 2020 International Conference Closing Remarks by Florence Boulton, National Director It has been truly a great couple of days. …
LEGO Quest
Helena sends message of support for our big event
Our Patron and exceptional actress, Helena Bonham Carter sent us this message to share with you; "I am proud to invite you to this year's Action …
Lockdown 2 – easy to understand COVID-19 advice for Duchenne families
The Government has released guidelines for the second English lockdown. Some people living with Duchenne muscular dystrophy will be in the …
Lockdown 2 – easy to understand COVID-19 advice for Duchenne familiesRead More
Virtual guided tour of the Conference platform
Watch Lynnette's short video showing you round the Conference platform. In the video you will find out How to registerHow to log inUpdate …
Support with navigating school
Book a 1-2-1 session with our two experts, to discuss and ask for support around the school/college process for your young person, advice on EHCPs and …
