We are delighted to announce that we have been awarded a grant from The National Lottery Community Fund. Funding from the Coronavirus …
Webinar has life-changing impact on Duchenne family
"Just a few days into lockdown, an email landed in my inbox from Action Duchenne offering us a free webinar with a physiotherapist. I bookmarked it, …
Webinar has life-changing impact on Duchenne familyRead More
Duchenne Grandparents’ evening was a success
Last week, we invited Duchenne Grandparents to come together to share their experiences and meet others in a similar situation. It was a …
Newly diagnosed families special event
When you receive the diagnosis of Duchenne muscular dystrophy, the amount of information you receive seems overwhelming. Here at Action …
New sessions announced
This year's Action Duchenne International Conference is virtual and you are invited! Tickets are FREE, all are welcome and we'll be sharing …
Invitation for the international Duchenne community
This year, the Action Duchenne International Conference is taking place ONLINE! Hear from top international Duchenne experts in a content-packed …
Invitation for the international Duchenne communityRead More
Gene therapy experts announced
Have we got an exciting line up of speakers and sessions for you! We will be announcing more details over the coming days and weeks. But for …
World Duchenne Awareness Day 2020 was a success
Thank you to everyone who liked, shared and interacted with our #WDAD2020 posts on Monday! We joined the global Duchenne community to celebrate our …
Open letter from the Department for Education #weneedanswers
In May, we sent out letters directly to Prime Minister Boris Johnson, Secretaries of State for Health, Education and Work and Pensions, as …
Open letter from the Department for Education #weneedanswersRead More
Share your experiences to help others
As the Action Duchenne International Conference 2020 is virtual this year, we have the opportunity to do things a little differently! As well as an …
Vote for Action Duchenne in the Discount Promo Codes Charity Poll
Every year, Action Duchenne supports over 1000 families affected by the condition. The Covid-19 pandemic has impacted not only our fundraising efforts …
Vote for Action Duchenne in the Discount Promo Codes Charity PollRead More
Taking Raxone? We need your input!
The National Institute for Health and Care Excellence (NICE) is consulting on a potential new drug called Idebenone (or Raxone) which may slow …
