It’s beginning to look a lot like Christmas!
This week, we’ve launched our Action Duchenne Santa’s Grotto; a little thank you to our community and a chance for families to come together online and visit Father Christmas. Last year, the feedback was so wonderful, we just knew we had to do it again this year!
Impact from Christmas 2020
This year, again, places are free for all UK-based Duchenne families (made possible by our friends at Sporting Bears). I hope you will make the most of this opportunity and enjoy the magic of Christmas together as a family.
Getting support over the holiday
Our offices will be closed from 12:00 GMT on Christmas Eve, re-opening on 29th December. We will then close at 12:00 GMT on New Year’s Eve, with normal hours resuming on 4th January 2022. Over the festive period, we will be running a reduced staff, however should you need support over the next 10 days, we are here for you, as always, via info@actionduchenne.org or on 020 7250 8240. We will respond to any messages as soon as possible.
There are also other places you can seek support and advice;
- Action Duchenne Dad’s Group
- Action Duchenne Mum’s Group
- Action Duchenne Grandparent’s Group
- We have lots of great content on our website including practical tips for managing during the holidays (webinar from lockdown summer)
- Making stretches fun (recorded with Marion Main, Lead Physiotherapist at GOSH).
- Watch the recordings from our recent International Conference (via the app if you have already registered, or you can register here).
Thank you
A big thank you to each and every person and organisation that have made a contribution to our charity over the last 12 months, from the volunteers, fundraisers, pharmaceutical companies and corporate partners to our social media followers, Duchenne families and of course, the children, young people and adults who live with Duchenne.
On behalf of our trustees and team, I would like to wish you and your family a happy and healthy Christmas.
Stay safe,
Florence
Making a donation this Christmas
When you make a donation to Action Duchenne at Christmas, your gift will give the children, young people, adults and their families living in the United Kingdom access to;
What your gift could provide
Thank you for your generosity, Happy Christmas!
The Action Duchenne Team
