making muscle wasting history

Events Calendar - Become a Fantastic Fundraiser and Campaigner

If you would like to become an Action Duchenne Fantastic Fundraiser then check out Events in your region or find an Event here in our Calendar. This is a diary of Action Duchenne Events and Conferences. If you would like to sign up and help Action Duchenne then please contact your local Regional Development Officer. Click here to see who your local Regional Development Officer is http://www.actionduchenne.org/about

May

1. Cycle the Americas

   • USA
   • 5 May 2009 - 1 January 2011

   Joy and Joff are cycling across America to raise money to fund further research into finding a cure for Duchenne Muscular Dystrophy. They are cycling over 20,000 miles in the space of 2 years. Follow their journey by clicking on the link below, and sponsor them to encourage them to keep on going!!

   http://www.cycletheamericas.org/

February

1. Seeds Of Hope Appeal

   • National
   • 15 February 2010 - 15 May 2010

   Pre- and primary school childcare establishements are invited to join in! Through these establishments children can donate £1 for their pack of seeds, who can grow the tallest sunflower? Children can get their sunflowers sponsored, with badges, medals and the chance to win fantastic prizes, children will love to take part in this. And every child will get to grow their very own beautiful sunflower! If you know of a local school or nursery which may like to take part, please contact your Regional Development Officer. Just follow the link below for their details.

   http://www.actionduchenne.org/about

March

1. Charity Highland Dancing Festival

   • Grangemouth - Scotland
   • 13 March 2010

   Donna and Gareth Mitchelson will be holding a Charity Highland Dancing Festival on Saturday 13th March 2010 in Grangemouth, Scotland, to help raise awareness of Duchenne while raising funds for Action Duchenne. This will be the first of this annual event, with future years planned for other locations for other conditions affecting dancer's and their families with this year being dedicated to Duchenne. For further details about this exciting fun day please visit www.charityhighlandfestival.com. Amongst other things happening on the day there will also be a "Guess the Birthday" of a giant Hamley's Bear which is beautifully dressed in it's own Scottish national costume and measures a massive 34"/87cm sitting (approx.) and nearly 50" (1 m 25 cm) from head to toe and weighs in at 10 kg!! For further details and to enter to have a chance of winning this incredible bear visit www.toeandheel.com.

   http://www.actionduchenne.org/stopwasting/usr9126051560/event/259/charity-highland-dancing-festi

1. Dinner & Dance

   • Hellens Manor, Much Marcle, Herefordshire HR8 2LY
   • 20 March 2010

   Saturday 20th March 7.00pm – Late ~ Live entertainment by Blue Moon ~ ~ Raffle & Auction ~ Individual tickets: £30 Entire table (seats 8): £200 Further details & bookings: contact Pauline on 01981 550878 or 07920 450 231 Email: Pauline@actionduchenne.org Early booking recommended! We will also be producing a brochure, sponsors and supporters may apply for advertising space / supporters message page by contacting me on the details above. If you cant make the night but wish to support the event, donations can be made via the link below. All proceeds to Action Duchenne.

   http://www.actionduchenne.org/stopwasting/pauline/event/293/dinner--dance

April

1. Dinner 4 Duchenne

   • National
   • 12 April 2010 - 18 April 2010

   "Dinner 4 Duchenne" is a fun and simple way you can help us to raise funds. You just need to organise a dinner party with your friends, family or work colleagues for Action Duchenne during the w/c 12th April. The guests will be asked to make a donation to attend your party, we have teamed up with a company called Dinner 4 Good which will help cover any embarrassment you may have asking for donations. You could choose a receipe from one of our cook books or you could raise extra funds by selling our cook books at your event. For more information about how you can be involved in this new and exciting fundraiser visit the page below.

   http://www.actionduchenne.org/stopwasting/dinner4duchenne

1. Chris Hoy Half Marathon

   • Edinburgh - Scotland
   • 18 April 2010

   After hearing that her close friends son had recently been diagnosed with Duchenne, Jennifer Roxburgh decided to take the challenge of entering this year's Chris Hoy Half Marathon to help raise awareness and funds for Action Duchenne. On Sunday 18th April Jennifer will start on the track at Meadowbank Stadium then out of central Edinburgh to the Firth of Forth coast at Portobello before heading southwards towards a grandstand finish at Musselburgh Racecourse. Please support Jennifer's efforts by visiting her events page and kindly donating while leaving a message of support. Good Luck Jennifer!

   http://www.actionduchenne.org/stopwasting/usr7759772195/event/353/chris-hoy-half-marathon

1. Underwood 10k challenge & 4k fun run, and family fun day

   • Underwood, Nottingham
   • 18 April 2010

   Taking place at Underwood, Nottingham on 18 April 2010, this is a great day out with BBQ, bouncy castle, stalls etc AND the running events, its a day for the whole family to enjoy. Action Duchenne have now been named as the chosen national charity to benefit from funds raised by this fabulous event. There is a 10k and a 4k fun run, with prizes! The categories for prize winners will be as follows: 10 km Challenge: 1st overall male and female 1st 16-34 yr old 1st 35-50 yr old 1st 50+ Fun Run: 1st Overall male and female 1st U12 boy and girl 1st over-12 male and female 1st Family to cross the line together The Underwood Challenge Run has attracted runners, male & females of all ages from a variety of places in the U.K. The unique setting in the heart of D.H. Lawrence country along with mix of old & young alike, makes this a special event. Helping charities & the community along the way. This historic annual event leaves runners with a sense of achievement & well being at the end of the challenge. Underwood school organise this run every year, amazingly this will be its 24th run. Over the years they have raised many thousands for both local and national charities. This year Action Duchenne are delighted to be their chosen National Charity! To book your place click the link below and chose "how to apply" link to the left. For further information please contact Pauline@actionduchenne.org or call Pauline on 01981 550878

   http://www.underwoodrun.com/4.html

1. London Marathon 2010

   • London
   • 25 April 2010

   If you are interested in applying for one of our places for the London Marathon 2010, please contact oshrit@actionduchenne.org. We have limited places, and everyone who wants to enter, will be sent an application form, which needs to be sent back to Oshrit. If you have applied through the ballot for your place, you will hear back in October. Please let Oshrit know if you have secured a place. If you haven't secured a place, please feel free to be in contact to request a registration of interest form from us. Please note that the registration of interest form will not guarantee you a place through us.

1. Spring Ball

   • City Hall, Cardiff
   • 30 April 2010

   A fabulous evening in this stunning venue, with live band and entertainment. Fabulous auction prizes, champagne reception and more. Black tie. For further details contact Pauline@actionduchenne.org Tickets are £80 per head or book a table (seats 10) for £700. A brochure is being produced for this event. To buy an advertising page or be listed on the supporters page please contact pauline@actionduchenne.org or call Pauline on 01981 550878

May

1. Bristol 10k

   • Bristol
   • 9 May 2010

   The race route is similar to the Bristol half marathon and uses a car-free course, starting from At-Bristol, along the harbourside, then follows the Avon Gorge and Cumberland Road, returning to At-Bristol via Prince Street Bridge. For runners also planning to take part in the half marathon, it offers a great training opportunity to experience a short version of the course. Once you have registered through general entries, please inform natalie@actionduchenne.org. We will provide you with sponsor forms, fundraising advice and a running shirt. To register visit

   http://www.bristolhalfmarathon.com/bristol10k/enter-the-race

1. "Moving Forward" - Sponsored Toddle

   • Vivary Park, Taunton
   • 16 May 2010

   Please come and join our sponsored toddle, Vivary Park, Taunton. It will be a fun day out for all the family, raising vital funds for AD. £3 to register, kids get a free t shirt and goody bag. For more information contact natalie@actionduchenne.org or call 07825 256944.

1. Body Fitness Competition

   • Harrogate - North East
   • 16 May 2010

   Some of you may remember Kathryn Armstrong from this year's Love Run as Kathryn did the warm up with the runners prior to the race starting. Kathryn is continuing to support Action Duchenne by entering into the Bodyfitness category of the North East Body building contest!! The event will be held in Harrogate on May 16th 2010 and will see Kathryn flexing her muscles in various poses. Bearing a tan, high heels, and nothing much else this is certainly going to be a tough challenge both physically and mentally for Kathryn. Please have a read of how much work Kathryn has to put into this event by visiting her events page, and please show your support by leaving a message and kind donation. As said by Kathryn "Let's show what can be done with your body if your muscles work and compare the results with the devastation it causes when muscles are broken." Good Luck Kathryn!

   http://www.actionduchenne.org/stopwasting/usr6842422226/event/352/north-east-bodyfitness-contest

1. Edinburgh Marathon

   • Edinburgh
   • 23 May 2010

   One of the biggest running events in Scotland is the Edinburgh Marathon which will be taking place on Sunday 23rd May 2010. Over 25000 runners take part in the national event and help promote and raise awareness of selected charities while doing so. This year will also see the new Edinburgh Half Marathon introduced for runners looking to take part but not quite ready for the full marathon. The half marathon will start at 8am while the full marathon will start at 10am. Niall Patterson, a work colleague of Sheryl McKenzie, decided after hearing about Duchenne to help raise awareness and funds for the charity. Niall will be gritting his teeth that Sunday morning to cover the gruelling 26 miles, certainly not for the faint hearted!! Please show your support for Niall's determination and efforts and sponsor him on his events page. Registrations for the Marathon, Half Marathon and Relay Team are open until April. If you want to get involved further details can be found here: http://www.edinburgh-marathon.com/?charity-information&charities_id=226

   http://www.actionduchenne.org/stopwasting/usr6815482137/event/316/edinburgh-marathon-2010

1. BUPA 10K

   • London
   • 31 May 2010

   If you are interested in running the BUPA 10k in 2010, please contact Oshrit on oshrit@actionduchenne.org

June

1. Climb A Ben For Duchenne

   • Scotland
   • 1 June 2010 - 30 June 2010

   2009 saw the launch of the Climb A Ben for Duchenne fundraising event inspired by Andrew and Emma Stirling. The event has become an annual event running throughout the month of June seeing friends get together and cover walking a ben in Scotland. The event raised great awareness about the charity and the condition Duchenne in 2009 while raising fantastic funds and 2010 will hopefully see more people taking part in the event. If you fancy getting involved with a group of friends then please visit the website to register or drop an email to dean@actionduchenne.org Together we will make muscle wasting history!

   http://www.climbabenforduchenne.com/

1. Street Collection

   • Hay On Wye
   • 1 June 2010

   The first of 2 Street collections being held during the atmospheric Guardian Hay Festival. With lots of visitors from all around the globe, this will raise awareness and funds. Volunteers needed, if you would like to help and hold a tin for an hour please contact Pauline@actionduchenne.org

   http://www.hayfestival.com/m-23-hay-festival-2010.aspx?skinid=2¤cysetting=GBP&localesetting=en-GB&resetfilters=true&

1. Street Collection

   • Hay On Wye
   • 3 June 2010

   Join us for the second street collection during the atmospheric Guardian Hay Festival. With lots of visitors from all around the globe, this will raise awareness and funds. Volunteers needed, if you would like to help and hold a tin for an hour please contact Pauline@actionduchenne.org

   http://www.hayfestival.com/m-23-hay-festival-2010.aspx?skinid=2¤cysetting=GBP&localesetting=en-GB&resetfilters=true&

1. Action Duchenne Lobby of Parliament

   • Houses of Parliament London
   • 16 June 2010

   We will need to redouble our efforts this year to get our message across to the new government folowing the General Election. We will be arguing for national commissioning for new Duchenne drugs and to ensure all families have access to internationally agreed standards of care.

July

1. 155 mile Coast 2 Coast ride

   • North East
   • 2 July 2010 - 4 July 2010

   Last year on Thursday 3rd, Friday 4th, and Saturday 5th September Philip Carr completed a 155 mile "Coast 2 Coast" cycle ride helping to raise funds and awareness for Action Duchenne. The story of what went on over these 3 days can be read of Philip's stop wasting page. Although the event was difficult and challenging at times Philip is determined to complete the 3 day challenge again this year starting from 2nd July and finishing on the 4th July to help continue raise funds and awareness for Action Duchenne. Please show your support by taking the time to look at Philip's stop wasting page where you can leave him a message of encouragement and kind donation. Good Luck with the event!!

   http://www.actionduchenne.org/stopwasting/usr7706751696

1. Birmingham and Black Country Half-Marathon

   • Wolverhampton - Birmingham
   • 3 July 2010

   13 mile multi terrain town & rural run. Point to Point race seeing the full beauty of the Birmingham and Wolverhampton canal network. Chip timing. For a training T shirt, runner vest and fundraising details please contact pauline@actionduchenne.org or call 01981 550878

   http://www.bbchm.co.uk/

1. The "DUCHball" Rally

   • West Sussex - North Devon
   • 29 July 2010 - 31 July 2010

   The DUCHball Rally UK is the brainchild of Dominic Stacey & Tim Redmond, the aim is simple, get from POINT A to POINT B in a car and raise or collect as much for the two charities as possible, this will be done via sponsorship, street collecting, business sponsorship and a raffle at the end. The route will be following the southern England coast all the way down to Penzance near Lands end, then up the west coast of Cornwall and Devon to Ilfracombe, we will be stopping off at a few Lifeboat stations on the way and letting the locals admire our lovely automotive creations!!!. Teams can register by contacting the organiser via the following link. Please get involved, you can be a part of this even if you don't wish to enter a team. We need your help!

   http://www.duchball.com/

1. Mourne Truck Run & Family Fun Day

   • Northern Ireland
   • 31 July 2010 - 1 August 2010

   2010 will see this ever growing annual event once again take place over the Mourne Mountains where hundreds of trucks take to the hills covering miles for muscles. This fundraising event inspired by Aislinn Grant, her dad Brian McNaulty and the Killowen Fundraising Group is enjoyed by everyone that comes on the day and always ensures to be a fun filled packed out day. The truck run will be held on the 31st July followed by a family fun day on the 1st August. If you are free that weekend then please come and join the fun and show your support. A big thank you goes out to everyone in helping make this weekend pull together and help raise the profile of the condition and charity while raising funds.

   http://www.actionduchenne.org/stopwasting/killowenfundraising

September

1. Bristol Half Marathon 2010

   • Bristol
   • 5 September 2010

   Please support Action Duchenne by taking part in this year's Bristol Half Marathon. The Bristol half marathon course offers great potential for fast times and will start and finish in Bristol’s historic Harbourside. The scenic, sea-level route will take runners around the old city, past the Harbourside, out and back along the Portway, through the stunning Avon Gorge, and pass twice under Brunel’s famous Clifton Suspension Bridge General entries for this year's Bristol Half Marathon open on the 1st March 2010. Please visit the website below to register for a place, once your place has been confirmed contact natalie@actionduchenne.org.

   http://www.bristolhalfmarathon.com/bhmHome/

1. Blooming Great Sunflower Party

   • Hereford Leisure Centre
   • 12 September 2010

   Who grew the tallest sunflower? Who painted the most beautiful sunflower picture? Which establishment won the draw for equipment? This is a free party for all who took part in the Seeds Of Hope Appeal in the Midlands and Wales. Numbers are limited, early booking recommended! Fundraisers will be presented with their badges, bronze, silver or even GOLD medals. "Seeds of Hope Appeal" is a sunflower growing appeal open to children throughout March, April and May. Please contact Pauline@actionduchenne.org or call Pauline on 01981 550878 for further details.

1. Experian Robin Hood Run - various distances

   • Nottingham
   • 12 September 2010

   Distances for every runner! Full marathon, relay marathon (for teams of 5), half marathon, and 2.6 mile fun run. For information on running for Action Duchenne, your t shirts, running vests & sponsor forms please contact pauline@actionduchenne.org or call 01981 550878

   http://www.experianfestivalofrunning.co.uk/index.htm

1. Bupa Great North Run 2010

   • Newcastle - Gateshead
   • 19 September 2010

   The Bupa Great North Run, the world’s biggest half marathon, will take place on Sunday 19 September 2010. Over 54,000 runners will enter the race that is shown live on the BBC and broadcast on Radio 5. Action Duchenne has limited spaces available for this event of which some have already been taken. So if you would like to take part in the most iconic half-marathon on the planet and help us raise the profile of Duchenne while raising funds then please get in touch by email at dean@actionduchenne.org or call 07780 955 695. This is a fantastic opportunity to get the word out about Action Duchenne and our cause.

   http://www.greatrun.org/Events/Event.aspx?id=1

October

1. Cardiff Half Marathon

   • Cardiff, Wales
   • 11 October 2010

   This is THE biggest road race in Wales. "One of the best halves around", the course is flat and fast with amazing scenery. It’s the perfect opportunity to achieve your personal best! Run it for Action Duchenne, contact Pauline@actionduchenne.org for further details, sponsor forms, training T shirts and a running vest!

   http://www.cardiffhalfmarathon.co.uk/

November

1. Conference 2010

   • Hilton Hotel London Canary Wharf, South Quay, Marsh Wall, London E14 9SH
   • 12 November 2010 - 13 November 2010

   Put this years conference dates in your diary. We have moved to a new and bigger venue at Canary Wharf in London. More news soon.