Working together
Our Board of Trustees has directed that we should work with both the national and international Duchenne communities because only through close co-operation can we seek to find treatments and cures for Duchenne.
This list of partner charities is by no means complete, but it shows the breadth of Duchenne organisations that we are currently working with:
Parent Project Muscular Dystrophy (USA), World Duchenne Organisation, Muscular Dystrophy UK, Joining jack, the Duchenne Children’s Trust, Alex’s wish, Duchenne now, the Duchenne Research Fund, Harrison’s Fund, Parent Project Italy, Parent Project Spain and MDA Hellas.
We also work with a range of other organisations on campaigns, advocacy, education and research work.
To improve care for everybody living with Duchenne we work with Treat NMD, The Scottish Muscle Network, The Welsh Muscle Network, The Care and Support Alliance, Rare Disease UK.
We collaborate with a range of organisations to fund research to develop potential treatments. These include The Genetic Alliance, FindaCure and The Scottish Chief Scientific Office.
Our education projects are often organised in conjunction with others, including Decipha, the Council For Disabled Children and Every Disabled Child Matters.
To offer the very best support to families, we work with the Disability Benefits Consortium, Disability Law Service, Contact a Family, Children’s Hospice Association Scotland, Acorns Children’s Hospice and Jack’s Place and Naomi House.
