Bone Health in Duchenne muscular dystrophy

Your views matter about bone health.  There’s still time to take part in an important survey to improve bone health in Duchenne.  The links below will take you to the survey (Closes end April 2018).

• Parent/guardian/primary carer survey

• Adolescent with Duchenne survey (aged 14 years and older)

Takes about 10 minutes and you can take part if you are over 14 years old and living with Duchenne or if you are a parent or main carer of a child (any age) with Duchenne.  The results will be discussed at a ENMC (European Neuro Muscular Centre) workshop in June.

The survey is part of the ScOT-DMD Bone Health

If you have any queries please contact Angela Stringer on 07535 498 506 or angela@actionduchenne.org

Further reading

• Action Duchenne funded ScOT-DMD studyRevised Standard of Care for Duchenne 

• ScOT-DMD research study update