Hear From Our Community

Seizing control empowering adults by transforming transition

June 23, 2022 by Lynnette

Blog by Florence Boulton, National Director Last week I had the opportunity to join our first session in the ‘Yes I can’ transition to adulthood …

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On the road with the Science on Tour

June 16, 2022 by Mehreen Arif

Wow! What an amazing 3 weeks it has been at the Duchenne Science on Tour 2022. We are officially 'on the road', travelling the country to visit the …

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My Dad is..

June 16, 2022 by Victoria Edwards

This Father’s Day we want to acknowledge all of the amazing dads in our Duchenne community. We are celebrating the Duchenne dads in every and any …

My Dad is..Read More

Newfound freedom on the South Downs

June 14, 2022 by Lizzie Cox

Article written by Albert Wright - Duchenne Dad & Action Duchenne volunteer "We recently acquired the Trekinetic GTE wheelchair. We got this …

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Scrutinising the science of Duchenne

May 27, 2022 by Lynnette

Blog by Florence Boulton, National Director Wow, what a day! After months of hard work, we finally pulled out all the stops today, kicking off the …

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Determination and achievement

May 10, 2022 by Lynnette

This article is written by Florence Boulton, National Director “We are all stronger, together” is a fantastic motto, but it’s even better when put …

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Peer to peer support – Chloe and Lyndsey

May 10, 2022 by Samantha

This article is written by Duchenne parents Chloe and Lyndsey who were carefully matched by our Support team. Chloe In Jan 2021 we officially …

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Peer-to-peer support – I don’t feel so alone anymore

May 9, 2022 by Samantha

This article is written by a Duchenne Mum, Vicki, about her experience with Action Duchenne’s peer-to-peer support. Hi my name is Vicki, I have an …

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Peer-to-peer support – meeting a fellow mom

May 5, 2022 by Lynnette

This article is written by a Duchenne Mum, Ruth, about her experience with Action Duchenne's peer-to-peer support. When my son was diagnosed with …

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DNACPR, choice and living life to the fullest

April 27, 2022 by Samantha

In 2021 Joshua graduated from UCLan with a first-class BA Hons in Film and Media Studies. He has created documentaries, films and is an avid …

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Peer-to-peer support – feeling positive for the future

April 20, 2022 by Lynnette

Article by Sarah | Duchenne Mum After my son was diagnosed last June I started following Action Duchenne on social media. I decided to join a Zoom …

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That word…Hospice

April 20, 2022 by Lizzie Cox

Article by Ashley Lawmon, Duchenne Mum If you're anything like me this word fills you with dread and fear. I put that conversation off for years! …

That word…HospiceRead More

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