We had a fantastic time in Krakow through Enable Holidays. We stayed in Hotel WYSPIANSKI room 109. This was a fully accessible room with a massive …
Barrie, Christine and Stephen share their 5 days in Krakow with us.Read More
Our community is at the heart of our work. Read our blogs to find out more about the many aspects of a journey with Duchenne muscular dystrophy directly from those who are living it.
Have you got a story to tell? We’d love to share it – please get in touch to find out more: lizzie.cox@actionduchenne.org

12 August 2022 by Samantha
We had a fantastic time in Krakow through Enable Holidays. We stayed in Hotel WYSPIANSKI room 109. This was a fully accessible room with a massive …
Barrie, Christine and Stephen share their 5 days in Krakow with us.Read More

20 July 2022 by Lynnette
Recorded at Science on Tour 2022 in Manchester. More about the workshops The Duchenne Science on Tour events are engaging, informal, free …

7 July 2022 by Lynnette
This past fortnight, Florence, our National Director has joined Mehreen and Alex at the Science on Tour workshops in Birmingham and Newcastle. …

23 June 2022 by Lynnette
Blog by Florence Boulton, National Director Last week I had the opportunity to join our first session in the ‘Yes I can’ transition to adulthood …
Seizing control empowering adults by transforming transitionRead More

16 June 2022 by Mehreen Arif
Wow! What an amazing 3 weeks it has been at the Duchenne Science on Tour 2022. We are officially 'on the road', travelling the country to visit the …

16 June 2022 by Victoria Edwards
This Father’s Day we want to acknowledge all of the amazing dads in our Duchenne community. We are celebrating the Duchenne dads in every and any …

14 June 2022 by Lizzie Cox
Article written by Albert Wright - Duchenne Dad & Action Duchenne volunteer "We recently acquired the Trekinetic GTE wheelchair. We got this …

27 May 2022 by Lynnette
Blog by Florence Boulton, National Director Wow, what a day! After months of hard work, we finally pulled out all the stops today, kicking off the …

10 May 2022 by Lynnette
This article is written by Florence Boulton, National Director “We are all stronger, together” is a fantastic motto, but it’s even better when put …

10 May 2022 by Samantha
This article is written by Duchenne parents Chloe and Lyndsey who were carefully matched by our Support team. Chloe In Jan 2021 we officially …

9 May 2022 by Samantha
This article is written by a Duchenne Mum, Vicki, about her experience with Action Duchenne’s peer-to-peer support. Hi my name is Vicki, I have an …
Peer-to-peer support – I don’t feel so alone anymoreRead More

5 May 2022 by Lynnette
This article is written by a Duchenne Mum, Ruth, about her experience with Action Duchenne's peer-to-peer support. When my son was diagnosed with …
Action Duchenne
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info@actionduchenne.org
